8,156
Views
20
CrossRef citations to date
0
Altmetric
Original Articles

“I love my sister, but sometimes I don't”: A qualitative study into the experiences of siblings of a child with profound intellectual and multiple disabilitiesFootnote

, &

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (4)

O. Múries-Cantán, A. Schippers, C. Giné & H. Blom-Yoo. (2023) Siblings of people with intellectual and developmental disabilities: a systematic review on their quality of life perceptions in the context of a family. International Journal of Developmental Disabilities 69:6, pages 797-810.
Read now
Caitlin Gray, Helen Leonard, Kingsley Wong, Sally Reed, Kate Schmidt, Rachel Skoss, Jianghong Li, Alison Salt, Jenny Bourke & Emma J. Glasson. (2023) Down syndrome or Rett syndrome in the family: Parental reflections on sibling experience. Journal of Intellectual & Developmental Disability 0:0, pages 1-14.
Read now
Kasper Kruithof, Lisa IJzerman, Appolonia Nieuwenhuijse, Sylvia Huisman, Alice Schippers, Dick Willems & Erik Olsman. (2021) Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study. Journal of Intellectual & Developmental Disability 46:4, pages 351-361.
Read now
Lale Hanöz, Serkan Özgün, Senem Zeytinoğlu Saydam, Celia Naivar Şen & Emine Ayyıldız. Siblings Under the Shadow: A Qualitative Study of Young Adults’ Parentification Experiences with Siblings with Special Needs. International Journal of Systemic Therapy 0:0, pages 1-18.
Read now

Articles from other publishers (16)

Jakub Niedbalski. (2023) Siblings' and parents' outlook for the prospective care for a family member with PIMD. Family Relations 72:5, pages 2942-2957.
Crossref
Olga Múries‐Cantán, Climent Giné, Roy I. Brown, Natasha Baqués Aguiar & Alice P. Schippers. (2023) Siblings of children with intellectual and developmental disabilities: Quality of life perceptions from Catalonia. Journal of Policy and Practice in Intellectual Disabilities 20:2, pages 192-204.
Crossref
Jakub Niedbalski. (2023) The impact of individuals with profound intellectual and multiple disabilities on peer relationships of typically developing siblings. Journal of Intellectual Disabilities, pages 174462952311681.
Crossref
Raquel A. Correia & Maria João Seabra-Santos. (2021) “I Would Like to Have a Normal Brother but I’m Happy With the Brother That I Have”: A Pilot Study About Intellectual Disabilities and Family Quality of Life From the Perspective of Siblings. Journal of Family Issues 43:12, pages 3148-3167.
Crossref
Avidan Milevsky & Orly Singer. (2022) Growing up alongside a sibling with a disability: A phenomenological examination of growth and deficiency in adulthood. Research in Developmental Disabilities 130, pages 104336.
Crossref
Vanessa Carolyn Andrews. 2022. The Role of Child Life Specialists in Community Settings. The Role of Child Life Specialists in Community Settings 242 267 .
Irene Damen, Alice Schippers, Alistair Niemeijer & Tineke Abma. (2022) Living with a Rare Disease as a Family: A Co-Constructed Autoethnography from a Mother. Disabilities 2:2, pages 348-364.
Crossref
Marleen D. Wessels, Muirne C. S. Paap & Annette A. J. van der Putten. (2022) The content validity of the Behavioural Appraisal Scales in people with profound intellectual and multiple disabilities: A Delphi study. Journal of Policy and Practice in Intellectual Disabilities 19:1, pages 86-101.
Crossref
Alexandra Lampp Berglund. (2021) “Just Bring Me Some Books to Read”: Exploring Parental Literacy Narratives Within the Dis/ability Community. Journal of Adolescent & Adult Literacy 65:5, pages 389-397.
Crossref
Marleen D. Wessels, Annette A. J. van der Putten & Muirne C. S. Paap. (2021) Inventory of assessment practices in people with profound intellectual and multiple disabilities in three European countries. Journal of Applied Research in Intellectual Disabilities 34:6, pages 1521-1537.
Crossref
Caroline L. Roberts. 2021. 153 188 .
María Inmaculada Fernández-Ávalos, María Nieves Pérez-Marfil, Rosario Ferrer-Cascales, Francisco Cruz-Quintana, Violeta Clement-Carbonell & Manuel Fernández-Alcántara. (2020) Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study. International Journal of Environmental Research and Public Health 17:22, pages 8690.
Crossref
Meghan M. Burke, Kristina Rios, Janeth Aleman‐Tovar, Chung eun Lee, Catherine K. Arnold & Aleksa Owen. (2020) Exploring the nature and correlates of caregiving among parents of adults with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities 33:6, pages 1259-1267.
Crossref
Kasper Kruithof, Dick Willems, Faridi Etten‐Jamaludin & Erik Olsman. (2020) Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis. Journal of Applied Research in Intellectual Disabilities 33:6, pages 1141-1150.
Crossref
Carmen Francisco Mora, Alba Ibáñez & Anna Balcells-Balcells. (2020) State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review. International Journal of Environmental Research and Public Health 17:19, pages 7220.
Crossref
Bridget M. Wright & Joann P. Benigno. (2019) Autism Spectrum Disorder and Sibling Relationships: Exploring Implications for Intervention Using a Family Systems Framework. American Journal of Speech-Language Pathology 28:2, pages 759-767.
Crossref