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Research Article

Birth of a child with congenital heart disease: emotional reactions of mothers and fathers according to time of diagnosis

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Pages 1249-1253 | Received 03 Jan 2013, Accepted 04 Feb 2013, Published online: 13 Mar 2013

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Stephanie Tesson, Phyllis N. Butow, Kate Marshall, Peter Fonagy & Nadine A. Kasparian. (2022) Parent-child bonding and attachment during pregnancy and early childhood following congenital heart disease diagnosis. Health Psychology Review 16:3, pages 378-411.
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Nelangi M. Pinto, Cindy Weng, Xiaoming Sheng, Kimberly Simon, Janice B. Byrne, Thomas Miller & Michael D. Puchalski. (2016) Modifiers of stress related to timing of diagnosis in parents of children with complex congenital heart disease. The Journal of Maternal-Fetal & Neonatal Medicine 29:20, pages 3340-3346.
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Articles from other publishers (45)

Anne Chevalier McKechnie, Kristin M. Elgersma, Matthew B. Ambrose, Aura A. Sanchez Mejia, Kavisha M. Shah, Taylor Iwaszko Wagner, Anna Trebilcock & Carrie Hallock. (2024) Nurse-guided mobile health care program to reduce emotional distress experienced by parents of infants prenatally diagnosed with critical congenital heart disease: A pilot study. Progress in Pediatric Cardiology 72, pages 101687.
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Kristal M. Hock, Katja Gist, Pariya L. Fazeli, Hayden J. Zaccagni, Robert A. Sorabella & Patricia A. Patrician. (2023) A descriptive assessment of the informed consent document used by congenital cardiac surgery centres. Cardiology in the Young, pages 1-6.
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Dua'a F. Al-Maghaireh, Mariam Mofleh Kawafha, Khatijah Lim Abdullah, Najah Sami Shawish, Andaleeb M. Abu Kamel & Niven Rizk Basyouni. (2023) Psychological problems among parents of children with congenital anomalies. Journal of Neonatal Nursing 29:6, pages 846-850.
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Shannon Dandy, Anja Wittkowski & Craig D. Murray. (2023) Parents' experiences of receiving their child's diagnosis of congenital heart disease: A systematic review and meta‐synthesis of the qualitative literature. British Journal of Health Psychology.
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F. Alonso Lloret, S. Gil Domínguez, V.M. Fontecha Merino, C. Rodríguez Ferreiro & A. Mendoza Soto. (2023) Perioperative stress and anxiety in parents of children operated on for congenital heart disease. Enfermería Intensiva (English ed.) 34:4, pages 205-217.
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F. Alonso-Lloret, A. Mendoza-Soto, S. Gil-Domínguez, V.M. Fontecha-Merino & C. Romero-Ferreiro. (2023) Estrés y ansiedad perioperatorios en padres de niños intervenidos de cardiopatías congénitas. Enfermería Intensiva 34:4, pages 205-217.
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Deng-pu Deng, Tao Qian, Yu-hong Liu, Zhong-shi Wu & Ting Lu. (2023) Prenatal diagnosis, management, and outcomes of fetuses with tetralogy of Fallot in China after prenatal counseling: a prospective cohort study. Frontiers in Pediatrics 11.
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Lianne Cole, Leigh Ridings & Shannon M. Phillips. (2023) Stress and Coping Factors Affecting Health-Related Quality of Life in Parents of Children with Congenital Heart Disease: An Integrative Review. Pediatric Cardiology.
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Karen J Eagleson, Desiree McCombs, Tiffany M Gerlich, Robert N Justo, Nadine A Kasparian & Samudragupta Bora. (2023) Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease. Journal of Pediatric Psychology 48:6, pages 537-552.
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Marisa Garcia Rodrigues, José Daniel Rodrigues, Matilde Monteiro Soares, Luís Filipe Azevedo, Pedro Pereira Rodrigues, José Carlos Areias & Maria Emília Areias. (2023) Improving the quality of life of parents of patients with congenital abnormalities using psychoeducational interventions: a systematic review. Quality of Life Research.
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Maria Gianelle, Sifa Turan, Jamie Mech & Alicia H. Chaves. (2023) The Impact of Neighborhood Socioeconomic Status, Race and Ethnicity, and Language on Prenatal Diagnosis of CHD. Pediatric Cardiology 44:5, pages 1168-1175.
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Nicole Toscana Marella, Adriana Montes Gil, Weijia Fan, Chantal Angueyra Aristizabal, Priyanka Asrani, Jamie K. Harrington, Alexandra Channing, Matan Setton, Amee M. Shah, Stéphanie Levasseur, Julie Glickstein & Kanwal M. Farooqi. (2023) 3D-Printed Cardiac Models for Fetal Counseling: A Pilot Study and Novel Approach to Improve Communication. Pediatric Cardiology.
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Mustafa Abdullah Özdemir, Duran Topak, Celaleddin Turgut, Mikail Telek & Fatih Doğar. (2022) Evaluation of depression, anxiety, and stress status in parents of patient with congenital clubfoot treated with Ponseti method: A prospective study. Medicine 101:44, pages e31654.
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Caitlin S. Haxel, Jonathan N. Johnson, Susan Hintz, Markus S. Renno, Rodrigo Ruano, Sinai C. Zyblewski, Julie Glickstein & Mary T. Donofrio. (2022) Care of the Fetus With Congenital Cardiovascular Disease: From Diagnosis to Delivery. Pediatrics 150:Supplement 2.
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Kelly W. Harris, Catherine M. Hammack-Aviran, Kathleen M. Brelsford, Ann Kavanaugh-McHugh & Ellen Wright Clayton. (2022) Mapping parents’ journey following prenatal diagnosis of CHD: a qualitative study. Cardiology in the Young, pages 1-9.
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Marisa Garcia Rodrigues, Matilde Monteiro Soares, José Daniel Rodrigues, Luís Filipe Azevedo, Pedro Pereira Rodrigues, José Carlos Areias & Maria Emília Areias. (2021) Quality of life of parents with children with congenital abnormalities: a systematic review with meta-analysis of assessment methods and levels of quality of life. Quality of Life Research 31:4, pages 991-1011.
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Rebecca K Delaney, Nelangi M Pinto, Elissa M Ozanne, Louisa A Stark, Mandy L Pershing, Alistair Thorpe, Holly O Witteman, Praveen Thokala, Linda M Lambert, Lisa M Hansen, Tom H Greene & Angela Fagerlin. (2021) Study protocol for a randomised clinical trial of a decision aid and values clarification method for parents of a fetus or neonate diagnosed with a life-threatening congenital heart defect. BMJ Open 11:12, pages e055455.
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Amy J. Lisanti, Aparna Kumar, Ryan Quinn, Jesse L. Chittams, Barbara Medoff-Cooper & Abigail C. Demianczyk. (2021) Role alteration predicts anxiety and depressive symptoms in parents of infants with congenital heart disease: a pilot study. Cardiology in the Young 31:11, pages 1842-1849.
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Yuri Choi & Sunhee Lee. (2021) Coping self-efficacy and parenting stress in mothers of children with congenital heart disease. Heart & Lung 50:2, pages 352-356.
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Amy J. Lisanti, Abigail C. Demianczyk, Kayla Vaughan, Giordana Fraser Martino, Rachel Schaake Ohrenschall, Ryan Quinn, Jesse L. Chittams & Barbara Medoff-Cooper. (2021) Parental role alteration strongly influences depressive symptoms in mothers of preoperative infants with congenital heart disease. Heart & Lung 50:2, pages 235-241.
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Emmanuel Suluba, Liu Shuwei, Qing Xia & Ally Mwanga. (2020) Congenital heart diseases: genetics, non-inherited risk factors, and signaling pathways. Egyptian Journal of Medical Human Genetics 21:1.
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Midori Ruth Lumsden, Debbie M. Smith, Emma Twigg, Rafael Guerrero & Anja Wittkowski. (2020) Children with single ventricle congenital heart defects: An interpretative phenomenological analysis of the lived parent experience. Progress in Pediatric Cardiology 59, pages 101297.
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Pei-Fen PohJan Hau LeeYee Jim LohTeng Hong TanKaris Kin Fong Cheng. (2020) Readiness for Hospital Discharge, Stress, and Coping in Mothers of Children Undergoing Cardiac Surgeries: A Single-Center Prospective Study. Pediatric Critical Care Medicine 21:5, pages e301-e310.
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Kelly W. Harris, Kathleen M. Brelsford, Ann Kavanaugh-McHugh & Ellen Wright Clayton. (2020) Uncertainty of Prenatally Diagnosed Congenital Heart Disease: A Qualitative Study. JAMA Network Open 3:5, pages e204082.
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Lyndsay J. Mackay, Karen M. Benzies, Chantelle Barnard & K Alix Hayden. (2019) A scoping review of parental experiences caring for their hospitalised medically fragile infants. Acta Paediatrica 109:2, pages 266-275.
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Ewa-Lena Bratt, Stina Järvholm, Britt-Marie Ekman-Joelsson, Antje Johannsmeyer, Sven-Åke Carlsson, Lars-Åke Mattsson & Mats Mellander. (2019) Parental reactions, distress, and sense of coherence after prenatal versus postnatal diagnosis of complex congenital heart disease. Cardiology in the Young 29:11, pages 1328-1334.
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Marie Vincenti, Sophie Guillaumont, Beatrice Clarivet, Valerie Macioce, Thibault Mura, Pierre Boulot, Gilles Cambonie & Pascal Amedro. (2019) Prognosis of severe congenital heart diseases: Do we overestimate the impact of prenatal diagnosis?. Archives of Cardiovascular Diseases 112:4, pages 261-269.
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Silvio Simeone, Gianluca Pucciarelli, Marco Perrone, Grazia Dell Angelo, Rea Teresa, Assunta Guillari, Gianpaolo Gargiulo, Giuseppe Comentale & Gaetano Palma. (2018) The lived experiences of the parents of children admitted to a paediatric cardiac intensive care unit. Heart & Lung 47:6, pages 631-637.
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Amy J. Lisanti. (2018) Parental stress and resilience in CHD: a new frontier for health disparities research. Cardiology in the Young 28:9, pages 1142-1150.
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Mary R. (Becky) Gregory, Paula M. Prouhet, Cynthia L. Russell & Brenda R. Pfannenstiel. (2018) Quality of Life for Parents of Children With Congenital Heart Defect. Journal of Cardiovascular Nursing 33:4, pages 363-371.
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Judith Tenenbaum. 2018. Fetal Cardiology. Fetal Cardiology 199 207 .
Lidia Sileshi & Endale Tefera. (2017) Health-related quality of life of mothers of children with congenital heart disease in a sub-Saharan setting: cross-sectional comparative study. BMC Research Notes 10:1.
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Gerasimos A. Kolaitis, Maya G. Meentken & Elisabeth M. W. J. Utens. (2017) Mental Health Problems in Parents of Children with Congenital Heart Disease. Frontiers in Pediatrics 5.
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Sarah E. Woolf‐King, Alexandra Anger, Emily A. Arnold, Sandra J. Weiss & David Teitel. (2017) Mental Health Among Parents of Children With Critical Congenital Heart Defects: A Systematic Review. Journal of the American Heart Association 6:2.
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Caroline K. Lee. (2017) Prenatal Counseling of Fetal Congenital Heart Disease. Current Treatment Options in Cardiovascular Medicine 19:1.
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Mei Zhu, Hao Liang, Juan Feng, Zhengjun Wang, Wei Wang & Yanhui Zhou. (2016) Effectiveness of medical self-experience counseling in pregnant women after echocardiographic detection of a suspected fetal heart anomaly: A longitudinal study. Journal of Obstetrics and Gynaecology Research 42:10, pages 1236-1244.
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Terra LafranchiPatricia Lincoln. (2015) Prenatal Counseling and Care for Single-Ventricle Heart Disease: One Center’s Model for Care. Critical Care Nurse 35:5, pages 53-61.
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Antonio Francesco Corno. (2015) “Functionally†Univentricular Hearts: Impact of Pre-Natal Diagnosis. Frontiers in Pediatrics 3.
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Maria Simonetta Spada, Lorenzo Galletti, Valentina Strappa & Angelo Compare. 2015. Clinical Psychology and Congenital Heart Disease. Clinical Psychology and Congenital Heart Disease 147 159 .
Kate V. Dennett, Sarah Tracy, Laurie Oliver Taylor, David Zurakowski & Catherine Chen. (2014) Prenatally-counseled congenital diaphragmatic hernia parents exhibit positive well-being before and after surgical repair. Journal of Pediatric Surgery 49:5, pages 700-705.
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