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Original Article

How common is depression among ALS caregivers? A longitudinal study

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Pages 448-455 | Received 11 Jun 2008, Published online: 18 Nov 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (11)

Marina Yamamoto, Keiko Tsukasaki & Kaoru Kyota. (2023) Relationship Between Resilience Factors and Caregiving Status of Families of Patients with Amyotrophic Lateral Sclerosis (ALS) in Japan. Journal of Community Health Nursing 0:0, pages 1-13.
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Anna Maksymowicz-Śliwińska, Dorothée Lulé, Krzysztof NieporĘcki, Katarzyna Ciećwierska, Albert C. Ludolph & Magdalena Kuźma-Kozakiewicz. (2023) The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 317-326.
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Jashelle Caga, Margaret C. Zoing, David Foxe, Eleanor Ramsey, Mirelle D’Mello, Eneida Mioshi, Rebekah M. Ahmed, Matthew C. Kiernan & Olivier Piguet. (2021) Problem-focused coping underlying lower caregiver burden in ALS-FTD: implications for caregiver intervention. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:5-6, pages 434-441.
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Samar M. Aoun, Paul A. Cafarella, Bruce Rumbold, Geoff Thomas, Anne Hogden, Leanne Jiang, Sonia Gregory & David W. Kissane. (2021) Who cares for the bereaved? A national survey of family caregivers of people with motor neurone disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:1-2, pages 12-22.
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Samar M Aoun, David W Kissane, Paul A. Cafarella, Bruce Rumbold, Anne Hogden, Leanne Jiang & Natasha Bear. (2020) Grief, depression, and anxiety in bereaved caregivers of people with motor neurone disease: a population-based national study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 593-605.
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Juyeon Oh & Jung A. Kim. (2018) Factor analysis of the Zarit Burden Interview in family caregivers of patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:1-2, pages 50-56.
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Kristen Qutub, David Lacomis, Stephen M. Albert & Eleanor Feingold. (2014) Life factors affecting depression and burden in amyotrophic lateral sclerosis caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:3-4, pages 292-297.
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Jan R. Oyebode, Hayley-Jane Smith & Karen Morrison. (2013) The personal experience of partners of individuals with motor neuron disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:1, pages 39-43.
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Francesco Tramonti, Paolo Bongioanni, Carolina Di Bernardo, Sara Davitti & Bruno Rossi. (2012) Quality of life of patients with amyotrophic lateral sclerosis. Psychology, Health & Medicine 17:5, pages 621-628.
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Kathrin Boerner & StevenE. Mock. (2012) Impact of patient suffering on caregiver well-being: The case of amyotrophic lateral sclerosis patients and their caregivers. Psychology, Health & Medicine 17:4, pages 457-466.
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Mary R. O’Brien, Bridget Whitehead, Barbara A. Jack & J. Douglas Mitchell. (2012) The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study. Disability and Rehabilitation 34:3, pages 247-256.
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Articles from other publishers (30)

Birgitta Jakobsson Larsson, Karin Nordin & Ingela Nygren. (2023) Symptoms of anxiety and depression in patients with amyotrophic lateral sclerosis and their relatives during the disease trajectory. Journal of the Neurological Sciences 455, pages 122780.
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Ana Paula Trucco, Eneida Mioshi, Naoko Kishita, Caroline Barry & Tamara Backhouse. (2023) Navigating an emotional journey: A qualitative study of the emotional experiences of family carers currently supporting people living with motor neurone disease. Palliative and Supportive Care, pages 1-7.
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F. Viader. (2023) La sclérose latérale amyotrophique : une maladie neurodégénérative emblématique. Bulletin de l'Académie Nationale de Médecine 207:3, pages 272-286.
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Paolo Bongioanni, Gian Domenico Borasio, David J Oliver, Andrea Romagnoli, Karl P Kapitza, Katie Sidle & Francesco Tramonti. (2023) Methods for informing people with amyotrophic lateral sclerosis/motor neuron disease of their diagnosis. Cochrane Database of Systematic Reviews 2023:2.
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Lene Klem Olesen, Karen la Cour, Heidi With, Annette Faber Mahoney & Charlotte Handberg. (2022) A cross-sectional evaluation of acceptability of an online palliative rehabilitation program for family caregivers of people with amyotrophic lateral sclerosis and cognitive and behavioral impairments. BMC Health Services Research 22:1.
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Shan Tang, Li Li, Hongxia Xue, Shuyan Cao, Chao Li, Kunjing Han & Binquan Wang. (2021) Caregiver burden and associated factors among primary caregivers of patients with ALS in home care: a cross-sectional survey study. BMJ Open 11:9, pages e050185.
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Cathryn Pinto, Adam W A Geraghty, Lucy Yardley & Laura Dennison. (2021) Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study. BMJ Open 11:8, pages e044724.
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Colin J. Mahoney, Rebekah M. Ahmed, William Huynh, Sicong Tu, Jonathan D. Rohrer, Richard S. Bedlack, Orla Hardiman & Matthew C. Kiernan. (2021) Pathophysiology and Treatment of Non-motor Dysfunction in Amyotrophic Lateral Sclerosis. CNS Drugs 35:5, pages 483-505.
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Ines Testoni, Lorenza Palazzo, Nicoletta Calamarà, Gabriella Rossi & Michael Alexander Wieser. (2021) “Imagine You Have ALS”: Death Education to Prepare for Advance Treatment Directives. Behavioral Sciences 11:1, pages 6.
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Samar M. Aoun, Kerrie Noonan, Geoff Thomas & Bruce Rumbold. (2021) Traumatised, angry, abandoned but some empowered: a national survey of experiences of family caregivers bereaved by motor neurone disease. Palliative Care and Social Practice 15, pages 263235242110385.
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James Grogan & Zachary Simmons. (2020) Telemedicine for the Care of Neuromuscular Disorders. Current Treatment Options in Neurology 22:6.
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Fernando L. Vázquez, Patricia Otero, Vanessa Blanco, Lara López & Ángela Torres. 2018. Caregiving and Home Care. Caregiving and Home Care.
Hyeon Sik Chu, Young Ran Tak & Seung Hyun Kim. (2018) Factors Influencing Psychosocial Well-Being in Family Caregivers of People with Amyotrophic Lateral Sclerosis. Journal of Korean Academy of Nursing 48:4, pages 454.
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Jessica de Wit, Leonhard A Bakker, Annerieke C van Groenestijn, Leonard H van den Berg, Carin D Schröder, Johanna MA Visser-Meily & Anita Beelen. (2017) Caregiver burden in amyotrophic lateral sclerosis: A systematic review. Palliative Medicine 32:1, pages 231-245.
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Dan Geng, RuWei Ou, XiaoHui Miao, LiHong Zhao, QianQian Wei, XuePing Chen, Yan Liang, HuiFang Shang & Rong Yang. (2017) Patients’ self-perceived burden, caregivers’ burden and quality of life for amyotrophic lateral sclerosis patients: a cross-sectional study. Journal of Clinical Nursing 26:19-20, pages 3188-3199.
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Cathy Gluyas, Susan Mathers, Nicole Hennessy Anderson & Anna Ugalde. (2016) Factors to consider for motor neurone disease carer intervention research: A narrative literature review. Palliative and Supportive Care 15:5, pages 600-608.
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Michiko Nakai, Yugo Narita & Hidekazu Tomimoto. (2017) An Investigation of Perspectives of Respite Admission Among People Living With Amyotrophic Lateral Sclerosis and the Hospitals That Support Them. Journal of Primary Care & Community Health 8:3, pages 163-168.
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Stephanie Johnson, Bryant Alonso, Katie Faulkner, Haley Roberts, Britton Monroe, Leigh Lehman & Pamalyn Kearney. (2017) Quality of Life Perspectives of People With Amyotrophic Lateral Sclerosis and Their Caregivers. The American Journal of Occupational Therapy 71:3, pages 7103190010p1-7103190010p7.
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Miriam Galvin, Bernie Corr, Caoifa Madden, Iain Mays, Regina McQuillan, Virpi Timonen, Anthony Staines & Orla Hardiman. (2016) Caregiving in ALS – a mixed methods approach to the study of Burden. BMC Palliative Care 15:1.
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Sverre Vigeland Lerum, Kari Nyheim Solbrække & Jan C. Frich. (2016) Family caregivers’ accounts of caring for a family member with motor neurone disease in Norway: a qualitative study. BMC Palliative Care 15:1.
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Xiaowei Su, Peter B. Kang, James A. Russell & Zachary Simmons. (2016) Ethical issues in the evaluation of adults with suspected genetic neuromuscular disorders. Muscle & Nerve 54:6, pages 997-1006.
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Lori A. Mitchell, John Hirdes, Jeff W. Poss, Caroline Slegers-Boyd, Hilary Caldarelli & Lynn Martin. (2015) Informal caregivers of clients with neurological conditions: profiles, patterns and risk factors for distress from a home care prevalence study. BMC Health Services Research 15:1.
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Sabrina Cipolletta & Linda Amicucci. (2015) The family experience of living with a person with amyotrophic lateral sclerosis: A qualitative study. International Journal of Psychology 50:4, pages 288-294.
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Dezhi Chen, Xiaoyan Guo, Zhenzhen Zheng, Qianqian Wei, Wei Song, Bei Cao, Rui Huang, Rong Yang & Huifang Shang. (2015) Depression and anxiety in amyotrophic lateral sclerosis: Correlations between the distress of patients and caregivers. Muscle & Nerve 51:3, pages 353-357.
Crossref
Juyeon OhJi Won AnKi-Wook OhSeong-Il OhJung A KimSeung Hyun KimJeong Seop Lee. (2015) Depression and Caregiving Burden in Families of Patients with Amyotrophic Lateral Sclerosis. Journal of Korean Academy of Nursing 45:2, pages 202.
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Susan K. BaxterWendy O. BairdSue ThompsonStephen M. BianchiStephen J. WaltersEllen LeeSam H. AhmedzaiAlison ProctorPamela J. ShawChristopher J. McDermott. (2013) The Impact on the Family Carer of Motor Neurone Disease and Intervention with Noninvasive Ventilation. Journal of Palliative Medicine 16:12, pages 1602-1609.
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Samar M Aoun, Brenda Bentley, Laura Funk, Chris Toye, Gunn Grande & Kelli J Stajduhar. (2012) A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions. Palliative Medicine 27:5, pages 437-446.
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Louisa Ng, Kirk Kee, Bhasker Amatya & Fary Khan. (2011) Patient/carer perceptions of disability in motor neurone disease and carer coping. International Journal of Therapy and Rehabilitation 18:10, pages 568-578.
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Claudia Zickler, Angela Riccio, Francesco Leotta, Sandra Hillian-Tress, Sebastian Halder, Elisa Holz, Pit Staiger-Sälzer, Evert-Jan Hoogerwerf, Lorenzo Desideri, Donatella Mattia & Andrea Kübler. (2011) A Brain-Computer Interface as Input Channel for a Standard Assistive Technology Software. Clinical EEG and Neuroscience 42:4, pages 236-244.
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Myoung Soo KimHyung-Ik ShinYusun MinJung Yoon KimJung Soon Kim. (2011) Correlation between Severe ALS Patient-Caregiver Couples' Characteristics and Caregivers' Health Related Quality of Life. Journal of Korean Academy of Nursing 41:3, pages 354.
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