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Amyotrophic Lateral Sclerosis Volume 11, 2010 - Issue 1-2
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Original Article

Identifying poor adaptation to a new diagnosis of motor neuron disease: A pilot study into the value of an early patient-led interview

Heino Hugel Aintree Specialist Palliative Care Services, University Hospital Aintree, LiverpoolCorrespondence[email protected]
,
Nicky Pih Department of Neurology, The Walton Centre for Neurology and Neurosurgery, Liverpool
,
Charlotte P. Dougan Department of Neurology, The Walton Centre for Neurology and Neurosurgery, Liverpool
,
Sally Rigby Midlands Centre for Spinal Injuries, Robert Jones and Agnes Hunt Orthopaedic NHS Trust, Oswestry, UK
&
Carolyn A. Young Department of Neurology, The Walton Centre for Neurology and Neurosurgery, Liverpool
Pages 104-109 | Received 01 Dec 2009, Accepted 17 Feb 2009, Published online: 26 Feb 2010

Citations (13)

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Read on this site (4)

Chris Gibbons, Everard Thornton, John Ealing, Pamela Shaw, Kevin Talbot, Alan Tennant & Carolyn Young. (2013) The impact of fatigue and psychosocial variables on quality of life for patients with motor neuron disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:7-8, pages 537-545.
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Kriten Mistry & Jane Simpson. (2013) Exploring the transitional process from receiving a diagnosis to living with motor neurone disease. Psychology & Health 28:8, pages 939-953.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Preference and Adherence 6, pages 691-701.
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Mary R. O'Brien, Bridget Whitehead, Barbara A. Jack & John Douglas Mitchell. (2011) From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): Experiences of people with ALS/MND and family carers – a qualitative study. Amyotrophic Lateral Sclerosis 12:2, pages 97-104.
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Articles from other publishers (9)

Sarah Remm, Elizabeth Halcomb & Moira Stephens. (2019) Experiences of being diagnosed with motor neuron disease: “I just want to know”. Collegian 26:5, pages 550-555.
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Annerieke C. Groenestijn, Carin D. Schröder, Esther T. Kruitwagen‐Van Reenen, Leonard H. Berg & Johanna M.A. Visser‐Meily. (2017) Participation restrictions in ambulatory amyotrophic lateral sclerosis patients: Physical and psychological factors. Muscle & Nerve 56:5, pages 912-918.
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Francesco Pagnini, Gian Mauro Manzoni, Aurora Tagliaferri & Chris J Gibbons. (2014) Depression and disease progression in amyotrophic lateral sclerosis: A comprehensive meta-regression analysis. Journal of Health Psychology 20:8, pages 1107-1128.
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Birgitta Jakobsson Larsson, Karin Nordin, Håkan Askmark & Ingela Nygren. (2014) Coping strategies among patients with newly diagnosed amyotrophic lateral sclerosis. Journal of Clinical Nursing 23:21-22, pages 3148-3155.
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Hikari Ando, Biswajit Chakrabarti, Robert M Angus, Rosanna Cousins, Everard W Thornton & Carolyn A Young. (2014) Experience of long-term use of non-invasive ventilation in motor neuron disease: an interpretative phenomenological analysis. BMJ Supportive & Palliative Care 4:1, pages 50-56.
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Chris J. Gibbons, Everard W. Thornton, John Ealing, Pamela J. Shaw, Kevin Talbot, Alan Tennant & Carolyn A. Young. (2013) Assessing social isolation in motor neurone disease: A Rasch analysis of the MND Social Withdrawal Scale. Journal of the Neurological Sciences 334:1-2, pages 112-118.
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Mitsuko UshikuboKoichi Okamoto. (2012) Circumstances surrounding death and nursing difficulties with end-of-life care for individuals with ALS in central Japan. International Journal of Palliative Nursing 18:11, pages 554-560.
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Louisa Ng & Fary Khan. (2011) Identification of Personal Factors in Motor Neurone Disease: A Pilot Study. Rehabilitation Research and Practice 2011, pages 1-7.
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Mary O'Brien. (2010) RESEARCH ROUNDUP. British Journal of Neuroscience Nursing 6:4, pages 194-196.
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