Citations (41)
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Minne Bakker, Huub Creemers, Karen Schipper, Anita Beelen, Hepke Grupstra, Frans Nollet & Tineke Abma. (2015) Need and value of case management in multidisciplinary ALS care: A qualitative study on the perspectives of patients, spousal caregivers and professionals. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:3-4, pages 180-186.
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Geraldine Foley. (2014) Loss and wellbeing in amyotrophic lateral sclerosis: Challenging the consensus. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:3-4, pages 161-162.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2012) Patients’ perceptions of services and preferences for care in amyotrophic lateral sclerosis: A review. Amyotrophic Lateral Sclerosis 13:1, pages 11-24.
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Geraldine Foley. (2011) The complexity of care in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis 12:3, pages 160-161.
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Articles from other publishers (37)
Sarah K. Bublitz, Cornelia Brandstötter, Martin Fegg, Joaquim J. Ferreira, Per Odin, Bastiaan R. Bloem, Wassilios G. Meissner, Richard Dodel, Anette Schrag & Stefan Lorenzl. (2023) Meaning in Life in Late-Stage Parkinson’s Disease: Results from the Care of Late-Stage Parkinsonism Study (CLaSP) in Six European Countries. Journal of Religion and Health.
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Sigrunn Drageset, Sidsel Ellingsen & Gørill Haugan. (2023) Salutogenic nursing home care: Antonovsky’s salutogenic health theory as a guide to wellbeing. Health Promotion International 38:2.
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Bethany Faith Leidl, Debbi Fox-Davis, Francis O. Walker, Jennifer Gabbard & Buddy Marterre. (2023) Layers of Loss: A Scoping Review and Taxonomy of HD Caregivers’ Spiritual Suffering, Grief/Loss and Coping Strategies. Journal of Pain and Symptom Management 65:1, pages e29-e50.
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Cristina Monforte-Royo, Joaquín Tomás-Sábado & Albert Balaguer. 2020. Encyclopedia of Quality of Life and Well-Being Research. Encyclopedia of Quality of Life and Well-Being Research
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Filipe Gonçalves, Margarida I. Teixeira & Bruno Magalhães. (2022) The role of spirituality in people with amyotrophic lateral sclerosis and their caregivers: Scoping review. Palliative and Supportive Care, pages 1-11.
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Mathieu Bernard, Emmanuelle Poncin, Betty Althaus & Gian Domenico Borasio. (2022) Posttraumatic growth in palliative care patients and its associations with psychological distress and quality of life. Palliative and Supportive Care 20:6, pages 846-853.
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Elisa Aust, Katharina Linse, Sven-Thomas Graupner, Markus Joos, Daniel Liebscher, Julian Grosskreutz, Johannes Prudlo, Thomas Meyer, René Günther, Sebastian Pannasch & Andreas Hermann. (2022) Quality of life and mental health in the locked-in-state—differences between patients with amyotrophic lateral sclerosis and their next of kin. Journal of Neurology 269:11, pages 5910-5925.
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Gørill Haugan, Britt Moene Kuven, Wenche Mjanger Eide, Siv Eriksen Taasen, Eva Rinnan, Vivien Xi Wu, Jorunn Drageset & Beate André. (2020) Nurse-patient interaction and self-transcendence: assets for a meaningful life in nursing home residents?. BMC Geriatrics 20:1.
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Mehmet ÖNGER & Tuba AYDIN. (2020) Nörolojik Hastalık ve Evlilik. Sakarya Medical Journal.
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Mathieu Bernard, André Berchtold, Florian Strasser, Claudia Gamondi & Gian Domenico Borasio. (2020) Meaning in life and quality of life: palliative care patients versus the general population. BMJ Supportive & Palliative Care, pages bmjspcare-2020-002211.
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Lukas Radbruch & Birgit Jaspers. 2019. Textbook of Palliative Care. Textbook of Palliative Care
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Betty AlthausGian Domenico BorasioMathieu Bernard. (2018) Gratitude at the End of Life: A Promising Lead for Palliative Care. Journal of Palliative Medicine 21:11, pages 1566-1572.
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Melanie Harris, Geoff Thomas, Mary Thomas, Paul Cafarella, Allegra Stocks, Julia Greig & R. Doug McEvoy. (2017) Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesis. Palliative and Supportive Care 16:2, pages 228-237.
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Lukas Radbruch & Birgit Jaspers. 2018. Textbook of Palliative Care. Textbook of Palliative Care
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René Günther, Nicole Richter, Anna Sauerbier, Kallol Ray Chaudhuri, Pablo Martinez-Martin, Alexander Storch & Andreas Hermann. (2016) Non-Motor Symptoms in Patients Suffering from Motor Neuron Diseases. Frontiers in Neurology 7.
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Martin Fegg, Dorothea Kudla, Monika Brandstätter, Veronika Deffner & Helmut Küchenhoff. (2015) Individual meaning in life assessed with the Schedule for Meaning in Life Evaluation: toward a circumplex meaning model. Palliative and Supportive Care 14:2, pages 91-98.
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Mathieu Bernard, Giliane Braunschweig, Martin Johannes Fegg & Gian Domenico Borasio. (2015) Meaning in life and perceived quality of life in Switzerland: results of a representative survey in the German, French and Italian regions. Health and Quality of Life Outcomes 13:1.
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Mary R. O'brien & David Clark. (2015) Spirituality and/or religious faith: A means for coping with the effects of amyotrophic lateral sclerosis/motor neuron disease?. Palliative and Supportive Care 13:6, pages 1603-1614.
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Joaquín Tomás-Sábado, Christian Villavicencio-Chávez, Cristina Monforte-Royo, Mariona Guerrero-Torrelles, Martin Johannes Fegg & Albert Balaguer. (2015) What Gives Meaning in Life to Patients With Advanced Cancer? A Comparison Between Spanish, German, and Swiss Patients. Journal of Pain and Symptom Management 50:6, pages 861-866.
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Sheelah Connolly, Miriam Galvin & Orla Hardiman. (2015) End-of-life management in patients with amyotrophic lateral sclerosis. The Lancet Neurology 14:4, pages 435-442.
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Benjamin Ilse, Tino Prell, Mario Walther, Viktor Hartung, Susanne Penzlin, Florian Tietz, Otto-Wilhelm Witte, Bernhard Strauss & Julian Grosskreutz. (2014) Relationships Between Disease Severity, Social Support and Health-Related Quality of Life in Patients with Amyotrophic Lateral Sclerosis. Social Indicators Research 120:3, pages 871-882.
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Dorothea Kudla, Julius Kujur, Sumanti Tigga, Prakash Tirkey, Punita Rai & Martin Johannes Fegg. (2015) Meaning in Life Experience at the End of Life: Validation of the Hindi Version of the Schedule for Meaning in Life Evaluation and a Cross-Cultural Comparison Between Indian and German Palliative Care Patients. Journal of Pain and Symptom Management 49:1, pages 79-88.
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Martin Fegg, Sibylle L'hoste, Monika Brandstätter & Gian Domenico Borasio. (2014) Does the Working Environment Influence Health Care Professionals' Values, Meaning in Life and Religiousness? Palliative Care Units Compared With Maternity Wards. Journal of Pain and Symptom Management 48:5, pages 915-923.
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Martin Johannes Fegg, Monika Kögler, Carina Abright, Mira Hensler & Stefan Lorenzl. (2013) Meaning in Life in Patients With Progressive Supranuclear Palsy. American Journal of Hospice and Palliative Medicine® 31:5, pages 543-547.
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Brenda Bentley, Moira O'Connor, Robert Kane & Lauren J. Breen. (2014) Feasibility, Acceptability, and Potential Effectiveness of Dignity Therapy for People with Motor Neurone Disease. PLoS ONE 9:5, pages e96888.
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Monika Brandstätter, Monika Kögler, Urs Baumann, Veronika Fensterer, Helmut Küchenhoff, Gian Domenico Borasio & Martin Johannes Fegg. (2014) Experience of meaning in life in bereaved informal caregivers of palliative care patients. Supportive Care in Cancer 22:5, pages 1391-1399.
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Huub CreemersJan H. VeldinkHepke GrupstraFrans NolletAnita BeelenLeonard H. van den Berg. (2014) Cluster RCT of case management on patients' quality of life and caregiver strain in ALS. Neurology 82:1, pages 23-31.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2013) Acceptance and Decision Making in Amyotrophic Lateral Sclerosis From a Life-Course Perspective. Qualitative Health Research 24:1, pages 67-77.
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Cornelia Meffert & Gerhild Becker. (2013) Quality of life in terminally ill patients – a challenge for future research. Public Health Forum 21:3, pages 5-6.
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Juan Manuel Núñez Olarte, Manuel Conti Jiménez, Coro Pérez Aznar, María Sánchez Isac, Natalia Cantero Sánchez, María Luisa Solano Garzón & Susana Guevara Méndez. (2013) Auditoría clínica del manejo de la esclerosis lateral amiotrófica en situación terminal: resultados preliminares. Medicina Paliativa 20:4, pages 133-142.
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Anneli O Ozanne, Ulla H Graneheim & Susann Strang. (2013) Finding meaning despite anxiety over life and death in amyotrophic lateral sclerosis patients. Journal of Clinical Nursing 22:15-16, pages 2141-2149.
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Gian Domenico Borasio. (2013) The role of palliative care in patients with neurological diseases. Nature Reviews Neurology 9:5, pages 292-295.
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Brenda Bentley, Samar M Aoun, Moira O’Connor, Lauren J Breen & Harvey Max Chochinov. (2012) Is dignity therapy feasible to enhance the end of life experience for people with motor neurone disease and their family carers?. BMC Palliative Care 11:1.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2011) Experience of Services as a Key Outcome in Amyotrophic Lateral Sclerosis (ALS) Care. American Journal of Hospice and Palliative Medicine® 29:5, pages 362-367.
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Ted M. Burns, Christopher D. Graham, Michael R. Rose & Zachary Simmons. (2012) Quality of life and measures of quality of life in patients with neuromuscular disorders. Muscle & Nerve 46:1, pages 9-25.
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Cristina Monforte-Royo, Joaquín Tomás–Sábado, Christian Villavicencio-Chávez & Albert Balaguer. (2010) Psychometric properties of the Spanish form of the schedule for meaning in life evaluation (SMiLE). Quality of Life Research 20:5, pages 759-762.
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