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Research Article

The lived experience of dysphagia following non-surgical treatment for head and neck cancer

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Flora M. M. Poon, Elizabeth C. Ward & Clare L. Burns. (2023) Adult dysphagia services in acute and subacute settings in Singapore. Speech, Language and Hearing 0:0, pages 1-13.
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Simone R. Howells, Petrea L. Cornwell, Elizabeth C. Ward & Pim Kuipers. (2021) Client perspectives on living with dysphagia in the community. International Journal of Speech-Language Pathology 23:2, pages 201-212.
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Dominika Lisiecka, Helen Kelly & Jeanne Jackson. (2021) How do people with Motor Neurone Disease experience dysphagia? A qualitative investigation of personal experiences. Disability and Rehabilitation 43:4, pages 479-488.
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F. S. Sinn, E. Charters, D. Stone, M. Janabi & H. Bogaardt. (2020) Responsiveness of the EAT-10 to Clinical Change in Head and Neck Cancer Patients with Dysphagia. International Journal of Speech-Language Pathology 22:1, pages 78-85.
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Rebecca L. Nund, Nerina A. Scarinci, Bena Cartmill, Elizabeth C. Ward, Pim Kuipers & Sandro V. Porceddu. (2016) Third-party disability in carers of people with dysphagia following non-surgical management for head and neck cancer. Disability and Rehabilitation 38:5, pages 462-471.
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Rebecca L. Nund, Anna F. Rumbach, Bridget C. Debattista, Martha N. T. Goodrow, Kori A. Johnson, Laura N. Tupling, Nerina A. Scarinci, Bena Cartmill, Elizabeth C. Ward & Sandro V. Porceddu. (2015) Communication changes following non-glottic head and neck cancer management: The perspectives of survivors and carers. International Journal of Speech-Language Pathology 17:3, pages 263-272.
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Nicole Watts Pappas. (2014) Synthesize, evaluate, act: 2013 Speech Pathology Australia Conference. International Journal of Speech-Language Pathology 16:3, pages 191-192.
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Articles from other publishers (73)

Marianne Boll Kristensen. (2023) Managing eating problems after cancer. Maturitas 178, pages 107843.
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Flora M. M. Poon, Elizabeth C. Ward & Clare L. Burns. (2023) Identifying prioritised actions for improving dysphagia services in Singapore: Insights from concept mapping with patients and caregivers. International Journal of Language & Communication Disorders.
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Beatrice Manduchi, Margaret I. Fitch, Jolie G. Ringash, Doris Howell, Katherine A. Hutcheson & Rosemary Martino. (2023) The Acceptability of Behavioural Swallowing Interventions for Head and Neck Cancer Patients During Radiotherapy: A Qualitative Study Exploring Experiences of Clinical Trial Speech-Language Pathologists. Dysphagia.
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Jessica W. Gregor. (2023) The Importance of Looking at the REST of the Swallow in Patients With Head and Neck Cancer. Perspectives of the ASHA Special Interest Groups, pages 1-6.
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Maude Brisson-McKenna, Gina D. Jefferson, Sana H. Siddiqui, Sarah Adams, Sofia Afanasieva (Sonia)Aïda Chérid, Jesse Burns, Carla Di Gironimo & Leila J. Mady. (2023) Swallowing Function After Treatment of Laryngeal Cancer. Otolaryngologic Clinics of North America 56:2, pages 371-388.
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Aurora Ninfa, Femke Jansen, Antonella Delle Fave, Birgit I. Lissenberg-Witte, Nicole Pizzorni, Robert J. Baatenburg de Jong, Femke Lamers, C. René Leemans, Robert P. Takes, Christianus H. J. Terhaard, Antonio Schindler & Irma M. Verdonck-de Leeuw. (2023) The Change in Social Eating over Time in People with Head and Neck Cancer Treated with Primary (Chemo)Radiotherapy: The Role of Swallowing, Oral Function, and Nutritional Status. Cancers 15:5, pages 1603.
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J. M. Patterson & M. Lawton. (2023) Dysphagia Advances in Head and Neck Cancer. Current Otorhinolaryngology Reports.
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Emma Charters, Tsu-Hui (Hubert) Low & Susan Coulson. (2023) Utility of an oral competence questionnaire for patients with facial nerve paralysis. Journal of Plastic, Reconstructive & Aesthetic Surgery 77, pages 201-208.
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Rebecca T. Bernstein, Aphra Garner-Purkis, Jennifer E. Gallagher, Newland-Pedley & Sasha Scambler. (2023) WITHDRAWN: A systematic review of social impacts of treatment and rehabilitation of head and neck cancer patients. Advances in Oral and Maxillofacial Surgery, pages 100409.
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Beatrice Manduchi, Zhiyao Che, Margaret I. Fitch, Jolie Ringash, Doris Howell & Rosemary Martino. (2022) Psychometric properties of patient-reported outcome measures for dysphagia in head and neck cancer: a systematic review protocol using COSMIN methodology. Systematic Reviews 11:1.
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Sara Matthews, Jo Brett, Pras Ramluggun & Eila Watson. (2022) The psychosocial experiences of human papillomavirus (HPV) positive oropharyngeal cancer patients following (chemo)radiotherapy: A systematic review and meta‐ethnography. Psycho-Oncology 31:12, pages 2009-2019.
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Laurelie R. Wishart, Grace B. Harris, Nabeela Cassim, Stephanie Alimin, Ting Liao, Bena Brown, Elizabeth C. Ward & Rebecca L. Nund. (2021) Association Between Objective Ratings of Swallowing and Dysphagia-Specific Quality of Life in Patients Receiving (Chemo)radiotherapy for Oropharyngeal Cancer. Dysphagia 37:4, pages 1014-1021.
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E. Charters, S. Coulson & T. Low. (2022) Oral Incompetence: changes in speech intelligibility following facial nerve paralysis. Journal of Plastic, Reconstructive & Aesthetic Surgery.
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Kelsey L. Corrigan, Brian De, Michael K. Rooney, Ethan B. Ludmir, Prajnan Das, Grace L. Smith, Cullen M. Taniguchi, Bruce D. Minsky, Eugene J. Koay, Albert C. Koong & Emma B. Holliday. (2022) Patient-Reported Outcomes After Chemoradiation in Patients With Anal Cancer: A Qualitative Analysis. Advances in Radiation Oncology 7:4, pages 100986.
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Samantha E. Shune, Deanna Linville & Ashwini Namasivayam-MacDonald. (2022) Integrating Family-Centered Care Into Chronic Dysphagia Management: A Tutorial. Perspectives of the ASHA Special Interest Groups 7:3, pages 795-806.
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Rebecca L. Nund & Bena Brown. (2022) Caregiver Burden in Head and Neck Cancer Dysphagia Cases. Perspectives of the ASHA Special Interest Groups 7:3, pages 879-884.
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Mark Dornan, Cherith Semple & Anne Moorhead. (2022) Experiences and perceptions of social eating for patients living with and beyond head and neck cancer: a qualitative study. Supportive Care in Cancer 30:5, pages 4129-4137.
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Jasmine Foley, Rebecca L. Nund, Elizabeth C. Ward, Clare L. Burns, Laurelie R. Wishart, Nicky Graham, Corey Patterson, Amy Ashley, Julie Fink, Emily Tiavaasue & Wendy Comben. (2022) Clinician and consumer perceptions of head and neck cancer services in rural areas: Implications for speech pathology service delivery. Australian Journal of Rural Health 30:2, pages 175-187.
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Gemma M. Clunie, Athina Belsi, Justin W. G. Roe, Caroline M. Alexander, Gurpreet Sandhu & Alison McGregor. (2021) Not Just Dyspnoea: Swallowing as a Concern for Adults with Laryngotracheal Stenosis Undergoing Airway Reconstruction. Dysphagia 37:2, pages 365-374.
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Joanne M. Patterson, Liya Lu, Laura‐Jayne Watson, Sam Harding, Andy R. Ness, Steve Thomas, Andrea Waylen, Miranda Pring, Tim Waterboer & Linda Sharp. (2021) Associations between markers of social functioning and depression and quality of life in survivors of head and neck cancer: Findings from the Head and Neck Cancer 5000 study. Psycho-Oncology 31:3, pages 478-485.
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Emma Charters, Hans Bogaardt, Jonathan Clark, Chris Milross, Amy Freeman‐Sanderson, Kirrie Ballard, Rafe Britton, Natalie McCabe, Hannah Davis, Tom Sullivan & Raymond Wu. (2021) Functional swallowing outcomes related to radiation exposure to dysphagia and aspiration‐related structures in patients with head and neck cancer undergoing definitive and postoperative intensity‐modulated radiotherapy. Head & Neck 44:2, pages 399-411.
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Emma Pagnamenta, Lauren Longhurst, Anne Breaks, Katie Chadd, Amit Kulkarni, Val Bryant, Kathy Tier, Vanessa Rogers, Sai Bangera, Josephine Wallinger, Paula Leslie, Rebecca Palmer & Victoria Joffe. (2022) Research priorities to improve the health of children and adults with dysphagia: a National Institute of Health Research and Royal College of Speech and Language Therapists research priority setting partnership. BMJ Open 12:1, pages e049459.
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Aurora Ninfa, Valeria Crispiatico, Nicole Pizzorni, Marta Bassi, Giovanni Casazza, Antonio Schindler & Antonella Delle Fave. (2021) The care needs of persons with oropharyngeal dysphagia and their informal caregivers: A scoping review. PLOS ONE 16:9, pages e0257683.
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Mark Dornan, Cherith Semple, Anne Moorhead & Eilís McCaughan. (2021) A qualitative systematic review of the social eating and drinking experiences of patients following treatment for head and neck cancer. Supportive Care in Cancer 29:9, pages 4899-4909.
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Laurelie R. Wishart, Bena Brown, Rebecca L. Nund, Elena Fotinos, Alana R. Hutchison, Elizabeth C. Ward & Sandro V. Porceddu. (2020) A prospective study monitoring carer distress during (chemo)radiotherapy for head and neck cancer via an electronic platform. Journal of Medical Radiation Sciences 68:2, pages 139-148.
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Shawn M. Lowe & Christina V. Nobriga. (2021) Head and Neck Cancer in a Rural U.S. Population: Quality of Life, Coping, Health Care Literacy, and Access to Services. American Journal of Speech-Language Pathology 30:3, pages 1116-1133.
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Yvette M. McCoy. (2021) Retraction: Servicing the Senior Swallow: A Family-Centered Private Practice Model of Service Delivery. Perspectives of the ASHA Special Interest Groups 6:1, pages 171-174.
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Simone R. Howells, Petrea L. Cornwell, Elizabeth C. Ward & Pim Kuipers. (2020) Living with Dysphagia in the Community: Caregivers “do whatever it takes.”. Dysphagia 36:1, pages 108-119.
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Claire Jeans, Elizabeth C. Ward, Bena Brown, Anne E. Vertigan, Amanda E. Pigott, Jodie L. Nixon, Chris Wratten & May Boggess. (2020) Association between external and internal lymphedema and chronic dysphagia following head and neck cancer treatment. Head & Neck 43:1, pages 255-267.
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Marianne Boll Kristensen, Irene Wessel, Anne Marie Beck, Karin B. Dieperink, Tina Broby Mikkelsen, Jens-Jakob Kjer Møller & Ann-Dorthe Zwisler. (2020) Rationale and design of a randomised controlled trial investigating the effect of multidisciplinary nutritional rehabilitation for patients treated for head and neck cancer (the NUTRI-HAB trial). Nutrition Journal 19:1.
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M. O’Connor, J. Waller, P. Gallagher, B. O’Donovan, N. Clarke, I. Keogh, D. MacCarthy, E. O’Sullivan, C. Timon, C. Martin, J. O’Leary & L. Sharp. (2020) Barriers and facilitators to discussing HPV with head and neck cancer patients: A qualitative study using the theoretical domains framework. Patient Education and Counseling 103:12, pages 2451-2459.
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Joanne S. Hiatt, Teresa E. Brown, Merrilyn Banks, Carrie-Anne Lewis & Judith Bauer. (2020) Patient and carer experience of nutrition care throughout treatment for head and neck cancer: a systematic qualitative review and thematic synthesis. Supportive Care in Cancer 28:12, pages 5633-5647.
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Samantha E. Shune, Barbara Resnick, Steven H. Zarit & Ashwini M. Namasivayam-MacDonald. (2020) Creation and Initial Validation of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES) Screening Tool. American Journal of Speech-Language Pathology 29:4, pages 2131-2144.
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Sylvia L. Crowder, Natasha Najam, Kalika P. Sarma, Barbara H. Fiese & Anna E. Arthur. (2020) Head and Neck Cancer Survivors’ Experiences with Chronic Nutrition Impact Symptom Burden after Radiation: A Qualitative Study. Journal of the Academy of Nutrition and Dietetics 120:10, pages 1643-1653.
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A.W. Midgley, A.R. Levy, R. Price, F.A. Cunha & S.N. Rogers. (2020) Should survivors of head and neck cancer be considered a distinct special population within the context of exercise prescription?. British Journal of Oral and Maxillofacial Surgery 58:7, pages 738-743.
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Katherine A. Hutcheson, Andrea Gomes, Veronica Rodriguez, Denise Barringer, Maisha Khan & Rosemary Martino. (2020) Eat All Through Radiation Therapy (EAT‐RT): Structured therapy model to facilitate continued oral intake through head and neck radiotherapy—User acceptance and content validation. Head & Neck 42:9, pages 2390-2396.
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Martin Checklin, Jessica Bain, Lucy Bath & Kate Lethbridge. (2019) Patients’ Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer. Dysphagia 35:4, pages 702-716.
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Marianne Boll Kristensen, Irene Wessel, Anne Marie Beck, Karin B. Dieperink, Tina Broby Mikkelsen, Jens-Jakob Kjer Møller & Ann-Dorthe Zwisler. (2020) Effects of a Multidisciplinary Residential Nutritional Rehabilitation Program in Head and Neck Cancer Survivors—Results from the NUTRI-HAB Randomized Controlled Trial. Nutrients 12:7, pages 2117.
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Elisa Dri, Valentina Bressan, Lucia Cadorin, Simone Stevanin, Giampiera Bulfone, Antonio Rizzuto & Ghirotto Luca. (2019) Providing care to a family member affected by head and neck cancer: a phenomenological study. Supportive Care in Cancer 28:5, pages 2105-2112.
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Mohammed Basha. 2020. Voice and Swallowing Disorders. Voice and Swallowing Disorders.
Gráinne C. Brady, Joanna Goodrich & Justin W. G. Roe. (2019) Using experience-based co-design to improve the pre-treatment care pathway for people diagnosed with head and neck cancer. Supportive Care in Cancer 28:2, pages 739-745.
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John Rocke, Oliver Mclaren, John Hardman, George Garas, Matthew E Smith, Hiro Ishii, James Constable, Theofano Tikka, Zi Wie Liu & Richard Williams. (2019) The role of allied healthcare professionals in head and neck cancer surveillance: A systematic review. Clinical Otolaryngology 45:1, pages 83-98.
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Marianne Boll Kristensen, Elizabeth Isenring & Bena Brown. (2020) Nutrition and swallowing therapy strategies for patients with head and neck cancer. Nutrition 69, pages 110548.
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Joanne M. Patterson. (2019) Psychological Interventions for the Head and Neck Cancer Population Who Are Experiencing Dysphagia. Perspectives of the ASHA Special Interest Groups 4:5, pages 1049-1054.
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Marianne Boll Kristensen, Tina Broby Mikkelsen, Anne Marie Beck, Ann-Dorthe Zwisler, Irene Wessel & Karin B. Dieperink. (2019) To eat is to practice—managing eating problems after head and neck cancer. Journal of Cancer Survivorship 13:5, pages 792-803.
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Simone R. Howells, Petrea L. Cornwell, Elizabeth C. Ward & Pim Kuipers. (2019) Understanding Dysphagia Care in the Community Setting. Dysphagia 34:5, pages 681-691.
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Rebecca Louise Nund, Bena Brown, Elizabeth Celeste Ward, Julia Maclean, Justin Roe, Joanne M. Patterson & Rosemary Martino. (2019) What Are We Really Measuring? A Content Comparison of Swallowing Outcome Measures for Head and Neck Cancer Based on the International Classification of Functioning, Disability and Health (ICF). Dysphagia 34:4, pages 575-591.
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Joanne Patterson, Kate Toft, Fiona McAuley, Emma King, Kirsty McLachlan, Justin W. G. Roe & Mary Wells. (2019) Feasibility and outcomes of fibreoptic endoscopic evaluation of swallowing following prophylactic swallowing rehabilitation in head and neck cancer. Clinical Otolaryngology 44:4, pages 549-556.
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Karen M. K. Chan, Herman K. W. Chan, Jerry Y. L. Siu, Dai Pu, Rebecca L. Nund & Elizabeth C. Ward. (2018) Impact of Head and Neck Cancer Treatment on Survivors' Mealtime Experience. The Laryngoscope 129:7, pages 1572-1578.
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Marta Qualizza, Valentina Bressan, Antonio Rizzuto, Simone Stevanin, Giampiera Bulfone, Lucia Cadorin & Luca Ghirotto. (2018) Listening to the voice of patients with head and neck cancer: A systematic review and meta‐synthesis. European Journal of Cancer Care 28:3.
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Molly K. Barnhart, Elizabeth C. Ward, Bena Cartmill, Rebecca Nund, Rachelle A. Robinson, Sophie J. Chandler & Robert I. Smee. (2018) Content analysis of rehabilitation goals for patients following non-surgical head and neck cancer treatment. Supportive Care in Cancer 27:2, pages 639-647.
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D. L. Burges Watson, S. Lewis, V. Bryant, J. Patterson, C. Kelly, R. Edwards-Stuart, M. J. Murtagh & V. Deary. (2018) Altered eating: a definition and framework for assessment and intervention. BMC Nutrition 4:1.
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Jodie L. Nixon, Amanda E. Pigott, Bena Cartmill, Jane Turner, Jennifer Fleming & Sandro V. Porceddu. (2018) A mixed methods examination of distress and person-centred experience of head and neck lymphoedema. Oral Oncology 83, pages 18-24.
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Molly K. Barnhart, Rachelle A. Robinson, Virginia A. Simms, Elizabeth C. Ward, Bena Cartmill, Sophie J. Chandler & Robert I. Smee. (2018) Treatment toxicities and their impact on oral intake following non-surgical management for head and neck cancer: a 3-year longitudinal study. Supportive Care in Cancer 26:7, pages 2341-2351.
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Valentina Bressan, Annamaria Bagnasco, Giuseppe Aleo, Gianluca Catania, Milko P. Zanini, Fiona Timmins & Loredana Sasso. (2017) The life experience of nutrition impact symptoms during treatment for head and neck cancer patients: a systematic review and meta-synthesis. Supportive Care in Cancer 25:5, pages 1699-1712.
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Laurelie R. Wall, Bena Cartmill, Elizabeth C. Ward, Anne J. Hill, Elizabeth Isenring & Sandro V. Porceddu. (2015) Evaluation of a weekly speech pathology/dietetic service model for providing supportive care intervention to head and neck cancer patients and their carers during (chemo)radiotherapy. Supportive Care in Cancer 24:3, pages 1227-1234.
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Faruque Riffat, Dakshika A. Gunaratne & Carsten E. Palme. (2015) Swallowing assessment and management pre and post head and neck cancer treatment. Current Opinion in Otolaryngology & Head and Neck Surgery 23:6, pages 440-447.
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Joanne M. Patterson, Elaine McColl, Janet Wilson, Paul Carding & Tim Rapley. (2015) Head and neck cancer patients’ perceptions of swallowing following chemoradiotherapy. Supportive Care in Cancer 23:12, pages 3531-3538.
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Rebecca Nund, Elizabeth Ward, Nerina Scarinci & Bena Cartmill. (2015) The Value of Qualitative Research in Dysphagia in the Head and Neck Cancer Population: What Can We Learn From the Survivors' Perspective?. Perspectives on Swallowing and Swallowing Disorders (Dysphagia) 24:3, pages 99-106.
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Rebecca L. Nund, Nerina A. Scarinci, Bena Cartmill, Elizabeth C. Ward, Pim Kuipers & Sandro V. Porceddu. (2014) Application of the International Classification of Functioning, Disability and Health (ICF) to People with Dysphagia Following Non-surgical Head and Neck Cancer Management. Dysphagia 29:6, pages 692-703.
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