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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 14, 2013 - Issue sup1
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Research Article

Funding agencies and disease organizations: Resources and recommendations to facilitate ALS clinical research

David A. ChadDepartment of Neurology, Massachusetts General Hospital, Boston, MassachusettsCorrespondence[email protected]
,
Sanjay BidichandaniMuscular Dystrophy Association
,
Lucie BruijnThe ALS Association
,
J. Donald CapraThe Judith and Jean Pape Adams Charitable Foundation, USA
,
Brian DickieMotor Neuron Disease Association, Northampton, UK
,
John FergusonOffice of Rare Diseases Research, National Institute of Health, NIH, Bethesda, Maryland, USA
,
Denise FiglewiczALS Society of Canada
,
Melissa ForsytheCongressionally Directed Medical Research Programs Office (CDMRP) US Army Medical Research and Material Command
,
Petra KaufmannNational Institute of Neurological Disorders and Stroke, NIH, Bethesda, Maryland
,
Annette KirshnerNational Institute of Environmental Heatlh Sciences, NIH, Bethesda, Maryland
&
William MontiALS Advocacy, New York, NY, USA
 show all
Pages 62-66 | Published online: 16 May 2013

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Mira Ahmad, Shelagh K. Genuis, Westerly Luth, Tania Bubela & Wendy S. Johnston. (2023) Amyotrophic lateral sclerosis (ALS) health charities are central to ALS care: perspectives of Canadians affected by ALS. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 246-255.
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Articles from other publishers (3)

Dong Dong, Roger Yat-Nork Chung, Rufina H. W. Chan, Shiwei Gong & Richard Huan Xu. (2020) Why is misdiagnosis more likely among some people with rare diseases than others? Insights from a population-based cross-sectional study in China. Orphanet Journal of Rare Diseases 15:1.
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Joshua D. Roth & Rosalia Misseri. 2019. Transitioning Medical Care. Transitioning Medical Care 125 137 .
Sabrina Paganoni, Chafic Karam, Nanette Joyce, Richard Bedlack & Gregory T. Carter. (2015) Comprehensive rehabilitative care across the spectrum of amyotrophic lateral sclerosis. NeuroRehabilitation 37:1, pages 53-68.
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