Citations (29)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (4)
Christopher Poppe, Insa Koné, Luzia Margarete Iseli, Kathi Schweikert, Bernice Simone Elger & Tenzin Wangmo. (2020) Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 519-541.
Read now
Read now
Kate T. Brizzi, John F. P. Bridges, Jill Yersak, Calaneet Balas, Neil Thakur, Miriam Galvin, Orla Hardiman, Chad Heatwole, John Ravits, Zachary Simmons, Lucie Bruijn, James Chan, Richard Bedlack & James D. Berry. (2020) Understanding the needs of people with ALS: a national survey of patients and caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:5-6, pages 355-363.
Read now
Read now
Louise Sofia Madsen, Jørgen Jeppesen & Charlotte Handberg. (2019) “Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation. Disability and Rehabilitation 41:12, pages 1410-1418.
Read now
Read now
Marc Van De Rijn, Sabrina Paganoni, Mark Levine-Weinberg, Katharine Campbell, Amy Swartz Ellrodt, Juan Estrada, Adam B. Cohen, Lee H. Schwamm & James D. Berry. (2018) Experience with telemedicine in a multi-disciplinary ALS clinic. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:1-2, pages 143-148.
Read now
Read now
Articles from other publishers (25)
Heather M. Young, Tina R. Kilaberia, Robin Whitney, Benjamin M. Link, Janice F. Bell, Orly Tonkikh, Jessica Famula & Björn Oskarsson. (2023)
Needs of persons living with
ALS
at home and their family caregivers: A scoping review
. Muscle & Nerve 68:3, pages 240-249.
Crossref
Crossref
Kate Brizzi. 2023. Neuropalliative Care, Part II. Neuropalliative Care, Part II
29
48
.
Palmira Bernocchi, Francesco BonomettiMarilisa SerliniGiuliano AssoniMargherita ZanardiniElisa PasottiSofia GuerriniSimonetta Scalvini. (2022) Telehealth and Telecare: A Real-Life Integrated Experience in the COVID-19 Pandemic. Telemedicine and e-Health 28:5, pages 720-727.
Crossref
Crossref
Véronique Danel Brunaud. (2022) Chapitre 4. Évaluation éthique des téléconsultations de suivi des patients atteints de sclérose latérale amyotrophique en phase avancée. Journal international de bioéthique et d'éthique des sciences Vol. 32:4, pages 87-100.
Crossref
Crossref
Jacqueline Gillespie, Antoine Przybylak-Brouillard & Christine L Watt. (2021) The Palliative Care Information Needs of Patients with Amyotrophic Lateral Sclerosis and their Informal Caregivers: A Scoping Review. Journal of Pain and Symptom Management 62:4, pages 848-862.
Crossref
Crossref
Delia González de la Cuesta, M. Carmen Expósito Sánchez, Beatriz Hernández Fregenal & Josep Oriol Casanovas Marsal. (2021) Needs of caregivers of amyotrophic lateral disease: a pilot study on multidisciplinary intervention. Revista Científica de la Sociedad de Enfermería Neurológica (English ed.) 54, pages 38-45.
Crossref
Crossref
Delia González de la Cuesta, M.ª Carmen Expósito Sánchez, Beatriz Hernández Fregenal & Josep Oriol Casanovas Marsal. (2021) Necesidades de los cuidadores de pacientes con enfermedad lateral amiotrófica: estudio piloto sobre una intervención multidisciplinar. Revista Científica de la Sociedad Española de Enfermería Neurológica 54, pages 38-45.
Crossref
Crossref
Pavel Schischlevskij, Isabell Cordts, René Günther, Benjamin Stolte, Daniel Zeller, Carsten Schröter, Ute Weyen, Martin Regensburger, Joachim Wolf, Ilka Schneider, Andreas Hermann, Moritz Metelmann, Zacharias Kohl, Ralf A. Linker, Jan Christoph Koch, Claudia Stendel, Lars H. Müschen, Alma Osmanovic, Camilla Binz, Thomas Klopstock, Johannes Dorst, Albert C. Ludolph, Matthias Boentert, Tim Hagenacker, Marcus Deschauer, Paul Lingor, Susanne Petri & Olivia Schreiber-Katz. (2021) Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives. Brain Sciences 11:6, pages 748.
Crossref
Crossref
Max J. Hulshoff, Elaine Book, Nabila Dahodwala, Caroline M. Tanner, Christina Robertson & Connie Marras. (2021) Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease. Movement Disorders Clinical Practice 8:4, pages 510-520.
Crossref
Crossref
Adrianna Gunton, Gregory Hansen & Kerri Lynn Schellenberg. (2021) Photovoice as a Participatory Research Tool in Amyotrophic Lateral Sclerosis. Journal of Neuromuscular Diseases 8:1, pages 91-99.
Crossref
Crossref
Dominika Lisiecka, Helen Kelly & Jeanne Jackson. (2020) ‘This is your golden time. You enjoy it and you’ve plenty time for crying after’: How dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis – A qualitative study. Palliative Medicine 34:8, pages 1097-1107.
Crossref
Crossref
Véronique Brunaud-Danel, Valérie Duchêne & Donatien Mallet. 2020. Manuel de soins palliatifs. Manuel de soins palliatifs
715
726
.
Dorte Winther, Charlotte Kirkegaard Lorenzen & Pia Dreyer. (2020) Everyday life experiences of close relatives of people with amyotrophic lateral sclerosis receiving home mechanical ventilation—A qualitative study. Journal of Clinical Nursing 29:13-14, pages 2306-2316.
Crossref
Crossref
Enrico Di Stasio, Emanuele Di Simone, Arianna Galeti, Daniele Donati, Chiara Guidotti, Daniela Tartaglini, Massimiliano Chiarini, Massimo Marano, Marco Di Muzio & Claudia Cianfrocca. (2020) Stress-related vulnerability and usefulness of healthcare education in Parkinson's disease: The perception of a group of family caregivers, a cross-sectional study. Applied Nursing Research 51, pages 151186.
Crossref
Crossref
Tom Burke, Jennifer Wilson O'Raghallaigh, Sinead Maguire, Miriam Galvin, Mark Heverin, Orla Hardiman & Niall Pender. (2019) Group interventions for amyotrophic lateral sclerosis caregivers in Ireland: a randomised controlled trial protocol. BMJ Open 9:9, pages e030684.
Crossref
Crossref
Sabrina Paganoni, Marc van de Rijn, Kristin Drake, Katherine Burke, Michael Doyle, Amy Swartz Ellrodt, Katherine Nicholson, Nazem Atassi, Fabiola de Marchi, Suma Babu, Juan Estrada, Lee H. Schwamm & James D. Berry. (2019) Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis. Muscle & Nerve 60:2, pages 147-154.
Crossref
Crossref
Jessica de Wit, Carin D. Schröder, Julia el Mecky, Anita Beelen, Leonard H. van den Berg & Johanna M. A. Visser-Meily. (2018) Support needs of caregivers of patients with amyotrophic lateral sclerosis: A qualitative study. Palliative and Supportive Care 17:2, pages 195-201.
Crossref
Crossref
Jashelle Caga, Sharpley Hsieh, Patricia Lillo, Kaitlin Dudley & Eneida Mioshi. (2019) The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers. Frontiers in Neurology 10.
Crossref
Crossref
Petter Sandstedt, Susanne Littorin, Gunilla Cröde Widsell, Sverker Johansson, Kristina Gottberg, Charlotte Ytterberg, Mariann Olsson, Lotta Widén Holmqvist & Marie Kierkegaard. (2018) Caregiver experience, health-related quality of life and life satisfaction among informal caregivers to patients with amyotrophic lateral sclerosis: A cross-sectional study. Journal of Clinical Nursing 27:23-24, pages 4321-4330.
Crossref
Crossref
Claudia Cianfrocca, Valeria Caponnetto, Daniele Donati, Loreto Lancia, Daniela Tartaglini & Enrico Di Stasio. (2018) The effects of a multidisciplinary education course on the burden, health literacy and needs of family caregivers. Applied Nursing Research 44, pages 100-106.
Crossref
Crossref
C Scaratti, M Leonardi, A Saladino, E Anghileri, M Broggi, E Lamperti, L Fariselli, R Ayadi, G Tringali & S Schiavolin. (2017) Needs of neuro-oncological patients and their caregivers during the hospitalization and after discharge: results from a longitudinal study. Supportive Care in Cancer 25:7, pages 2137-2145.
Crossref
Crossref
V. Danel-Brunaud, L. Touzet, L. Chevalier, C. Moreau, D. Devos, S. Vandoolaeghe & L. Defebvre. (2017) Ethical considerations and palliative care in patients with amyotrophic lateral sclerosis: A review. Revue Neurologique 173:5, pages 300-307.
Crossref
Crossref
Samar M Aoun, Lauren J Breen, David Oliver, Robert D Henderson, Robert Edis, Margaret O'Connor, Denise Howting, Rodney Harris & Carol Birks. (2017) Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national survey. Journal of the Neurological Sciences 372, pages 144-151.
Crossref
Crossref
Sverre Vigeland Lerum, Kari Nyheim Solbrække & Jan C. Frich. (2016) Family caregivers’ accounts of caring for a family member with motor neurone disease in Norway: a qualitative study. BMC Palliative Care 15:1.
Crossref
Crossref
Huub Creemers, Sandra de Morée, Jan H Veldink, Frans Nollet, Leonard H van den Berg & Anita Beelen. (2016) Factors related to caregiver strain in ALS: a longitudinal study. Journal of Neurology, Neurosurgery & Psychiatry 87:7, pages 775-781.
Crossref
Crossref