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Research Article

Item response theory analysis of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised in the Pooled Resource Open-Access ALS Clinical Trials Database

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Pages 157-167 | Received 21 Apr 2015, Accepted 28 Aug 2015, Published online: 16 Oct 2015

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Danielle Boyce, Michael Robinson, Jesse M. Cedarbaum, Lisa M. Shank, Christopher J. McDermott & Ruben P. A. van Eijk. (2023) A qualitative evaluation of the revised amyotrophic lateral sclerosis functional rating scale (ALSFRS-R) by the patient community: a web-based cross-sectional survey. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 272-280.
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Jiao Liu, Xiaoyue Luo, Xueping Chen & Huifang Shang. (2020) Serum creatinine levels in patients with amyotrophic lateral sclerosis: a systematic review and meta-analysis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 502-508.
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Carolyn A. Young, Roger Mills, Ammar Al-Chalabi, Georgina Burke, Siddharthan Chandran, David J Dick, John Ealing, C. Oliver Hanemann, Timothy Harrower, Christopher J. Mcdermott, Tahir Majeed, Ashwin Pinto, Kevin Talbot, Jannette Walsh, Timothy L. Williams & Alan Tennant. (2020) Measuring quality of life in ALS/MND: validation of the WHOQOL-BREF. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:5-6, pages 364-372.
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. (2018) Theme 9 Clinical trials and trial design. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:sup1, pages 264-281.
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Koji Takei, Fumihiro Takahashi, Shawn Liu, Kikumi Tsuda & Joseph Palumbo. (2017) Post-hoc analysis of randomised, placebo-controlled, double-blind study (MCI186-19) of edaravone (MCI-186) in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:sup1, pages 49-54.
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Articles from other publishers (22)

Cara Donohue, Jennifer L. Chapin, Amber Anderson, Lauren DiBiase, Lauren Tabor Gray, James P. Wymer & Emily K. Plowman. (2023) Sensitivity and specificity of the Amyotrophic Lateral Sclerosis Functional Rating Scale—Revised to detect dysarthria in individuals with amyotrophic lateral sclerosis. Muscle & Nerve 68:3, pages 296-302.
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Reza Boostani, Nahid Olfati, Hosein Shamshiri, Zanireh Salimi, Farzad Fatehi, Seyed Arya Hedjazi, Atefeh Fakharian, Majid Ghasemi, Ali Asghar Okhovat, Keivan Basiri, Bahram Haghi Ashtiani, Behnaz Ansari, Gholam Reza Raissi, Seyed Ahmadreza Khatoonabadi, Payam Sarraf, Sara Movahed, Akram Panahi, Bentolhoda Ziaadini, Mohammad Yazdchi, Jalal Bakhtiyari & Shahriar Nafissi. (2023) Iranian clinical practice guideline for amyotrophic lateral sclerosis. Frontiers in Neurology 14.
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Susan L. Hartmaier, Thomas Rhodes, Suzanne F. Cook, Courtney Schlusser, Chao Chen, Steve Han, Neta Zach, Venkatesha Murthy & Shreya Davé. (2022) Qualitative measures that assess functional disability and quality of life in ALS. Health and Quality of Life Outcomes 20:1.
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Leigh E. Colvin, Zachariah W. Foster, Thor D. Stein, Manisha Thakore‐James, Mohammad Kian Salajegheh, Kendall Carr, Keith R. Spencer, Nazifa Abdul Rauf, Latease Adams, James G. Averill, Sean E. Walker, Ian Robey, Victor E. Alvarez, Bertrand R. Huber, Ann C. McKee, Neil W. Kowall & Christopher B. Brady. (2022) Utility of the ALSFRS‐R for predicting ALS and comorbid disease neuropathology: The Veterans Affairs Biorepository Brain Bank . Muscle & Nerve 66:2, pages 167-174.
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Betts Peters, Brandon Eddy, Deirdre Galvin-McLaughlin, Gail Betz, Barry Oken & Melanie Fried-Oken. (2022) A systematic review of research on augmentative and alternative communication brain-computer interface systems for individuals with disabilities. Frontiers in Human Neuroscience 16.
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Sanjeev Kharel, Rajeev Ojha, Veeramani Preethish‐Kumar & Riwaj Bhagat. (2022) C‐reactive protein levels in patients with amyotrophic lateral sclerosis: A systematic review. Brain and Behavior 12:3.
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Özden O. Dalgıç, Haoran Wu, F. Safa Erenay, Mustafa Y. Sir, Osman Y. Özaltın, Brian A. Crum & Kalyan S. Pasupathy. (2021) Mapping of critical events in disease progression through binary classification: Application to amyotrophic lateral sclerosis. Journal of Biomedical Informatics 123, pages 103895.
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Stanisław Maksymowicz, Paula Kukołowicz, Tomasz Siwek & Agnieszka Rakowska. (2020) Validation of the revised Amyotrophic Lateral Sclerosis Functional Rating Scale in Poland and its reliability in conditions of the medical experiment. Neurological Sciences 42:3, pages 943-949.
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Malin Sixt Börjesson, Lena Hartelius & Katja Laakso. (2021) Communicative Participation in People with Amyotrophic Lateral Sclerosis. Folia Phoniatrica et Logopaedica 73:2, pages 101-108.
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E. Srinivasan & R. Rajasekaran. (2020) A Systematic and Comprehensive Review on Disease-Causing Genes in Amyotrophic Lateral Sclerosis. Journal of Molecular Neuroscience 70:11, pages 1742-1770.
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Ahmad R. Abuzinadah, Aysha A. AlShareef, Abdullah AlKutbi, Ahmed K. Bamaga, Ali Alshehri, Hussein Algahtani, Edward Cupler & Mohammed H. Alanazy. (2020) Amyotrophic lateral sclerosis care in Saudi Arabia: A survey of providers’ perceptions. Brain and Behavior 10:10.
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Jennifer L. Chapin, Lauren Tabor Gray, Terrie Vasilopoulos, Amber Anderson, Lauren DiBiase, Justine Dallal York, Raele Robison, James Wymer & Emily K. Plowman. (2020) Diagnostic utility of the amyotrophic lateral sclerosis Functional Rating Scale—Revised to detect pharyngeal dysphagia in individuals with amyotrophic lateral sclerosis. PLOS ONE 15:8, pages e0236804.
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Jin-Mo Park, Sun-Young Kim, Donghwi Park & Jin-Sung Park. (2019) Effect of edaravone therapy in Korean amyotrophic lateral sclerosis (ALS) patients. Neurological Sciences 41:1, pages 119-123.
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Jue Wang & Sheng Luo. (2018) Joint modeling of multiple repeated measures and survival data using multidimensional latent trait linear mixed model. Statistical Methods in Medical Research 28:10-11, pages 3392-3403.
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Michael Lee & Alana McCambridge. (2018) Clinimetrics: Amyotrophic Lateral Sclerosis Functional Rating Scale-revised (ALSFRS-R). Journal of Physiotherapy 64:4, pages 269-270.
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Dongwoo Chae & Kyungsoo Park. (2018) An item response theory based integrated model of headache, nausea, photophobia, and phonophobia in migraine patients. Journal of Pharmacokinetics and Pharmacodynamics 45:5, pages 721-731.
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Sinikka Tarvonen-Schröder, Anne Kaljonen & Katri Laimi. (2018) Disability in amyotrophic lateral sclerosis compared with traumatic brain injury using the World Health Organization Disability Assessment Schedule 2.0 and the International Classification of Functioning minimal generic set. International Journal of Rehabilitation Research 41:3, pages 224-229.
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Ruben P.A. van Eijk, Stavros Nikolakopoulos, Toby A. Ferguson, Dawei Liu, Marinus J.C. Eijkemans & Leonard H. van den Berg. (2018) Increasing the efficiency of clinical trials in neurodegenerative disorders using group sequential trial designs. Journal of Clinical Epidemiology 98, pages 80-88.
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Ruben P A van Eijk, Marinus J C Eijkemans, Toby A Ferguson, Stavros Nikolakopoulos, Jan H Veldink & Leonard H van den Berg. (2018) Monitoring disease progression with plasma creatinine in amyotrophic lateral sclerosis clinical trials. Journal of Neurology, Neurosurgery & Psychiatry 89:2, pages 156-161.
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Patricia L. Andres, Margaret (Peggy) Allred, Helen E. Stephens, Mary Proffitt Bunnell, Catherine Siener, Eric A. Macklin, Travis Haines, Robert A. English, Katherine A. Fetterman, Edward J. Kasarskis, Julaine Florence, Zachary Simmons & Merit E. Cudkowicz. (2017) Fixed dynamometry is more sensitive than vital capacity or ALS rating scale. Muscle & Nerve 56:4, pages 710-715.
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Jue WangSheng Luo. (2017) Multidimensional latent trait linear mixed model: an application in clinical studies with multivariate longitudinal outcomes. Statistics in Medicine 36:20, pages 3244-3256.
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Leonhard A. Bakker, Carin D. Schröder, Michael A. van Es, Paul Westers, Johanna M. A. Visser-Meily & Leonard H. van den Berg. (2017) Assessment of the factorial validity and reliability of the ALSFRS-R: a revision of its measurement model. Journal of Neurology 264:7, pages 1413-1420.
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