Citations (20)
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Christina L. Rush, Ethan G. Lester, Heena Manglani, Emily Woodworth, Ottavio Vitolo, Maurizio Fava, James D. Berry, Kate Brizzi, Suma Babu, Elizabeth C. Lindenberger, J. Randall Curtis & Ana-Maria Vranceanu. (2023) Resilient together-ALS: leveraging the NDD transdiagnostic framework to develop an early dyadic intervention for people with amyotrophic lateral sclerosis and their informal care-partners. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:7-8, pages 719-726.
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Christopher Poppe, Insa Koné, Luzia Margarete Iseli, Kathi Schweikert, Bernice Simone Elger & Tenzin Wangmo. (2020) Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 519-541.
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Geraldine Foley & Geralyn Hynes. (2018) Decision-making among patients and their family in ALS care: a review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:3-4, pages 173-193.
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Articles from other publishers (17)
Christina L Rush, Ethan G Lester, James D Berry, Kate T Brizzi, Elizabeth C Lindenberger, Jared Randall Curtis & Ana-Maria Vranceanu. (2023) A roadmap for early psychosocial support in palliative care for people impacted by ALS—reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care. Translational Behavioral Medicine 13:9, pages 722-726.
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Remko M. van Eenennaam, Neele Rave, Willeke J. Kruithof, Esther T. Kruitwagen-van Reenen, Leonard H. van den Berg, Johanna A. Visser-Meily & Anita Beelen. (2023) Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals. PLOS ONE 18:9, pages e0290508.
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Sean White, Alicia O'Cathain, Vanessa Halliday, Liz Croot & Christopher J. McDermott. (2023) Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis. Health Expectations 26:4, pages 1418-1435.
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Benzi M Kluger, Peter Hudson, Laura C Hanson, Radka Bužgovà, Claire J Creutzfeldt, Roop Gursahani, Malenna Sumrall, Charles White, David J Oliver, Steven Z Pantilat & Janis Miyasaki. (2023) Palliative care to support the needs of adults with neurological disease. The Lancet Neurology 22:7, pages 619-631.
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Asako Saji, Ai Oishi & Richard Harding. (2023) Self-perceived Burden for People With Life-threatening Illness: A Qualitative Systematic Review. Journal of Pain and Symptom Management 65:3, pages e207-e217.
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Marit Sofie Oseland, Unni Sveen & Tina Taule. (2023) 'It’s become a theatre’: relational experiences of family carers and people with Amyotrophic lateral sclerosis (ALS) after cognitive impairment emerges. F1000Research 12, pages 1092.
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Michael B. Gill. 2023. New Directions in the Ethics of Assisted Suicide and Euthanasia. New Directions in the Ethics of Assisted Suicide and Euthanasia
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Marion Sommers-Spijkerman, Neele Rave, Esther Kruitwagen-van Reenen, Johanna M. A. Visser-Meily, Melinda S. Kavanaugh & Anita Beelen. (2022) Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs. BMC Psychology 10:1.
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Deidre D. Morgan, Eileen Willis, Kate Sweet, Pen Roe, Joana Rabaçal & David C. Currow. (2022) The Complexities of Prescribing Assistive Equipment at the End of Life—Patient and Caregivers’ Perspectives. Healthcare 10:6, pages 1005.
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Ciaran Clarke, Mary Cannon, Norbertas Skokauskas & Pauline Twomey. (2021) The debate about physician assisted suicide and euthanasia in Ireland – Implications for psychiatry. International Journal of Law and Psychiatry 79, pages 101747.
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Deidre D Morgan, Celia Marston, Elizabeth Barnard & Caroline Farrow. (2021) Conserving dignity and facilitating adaptation to dependency with intimate hygiene for people with advanced disease: A qualitative study. Palliative Medicine 35:7, pages 1366-1377.
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Barbara Bassola, Silvia Cilluffo & Maura Lusignani. (2020) Going inside the relationship between caregiver and care‐receiver with Amyotrophic Lateral Sclerosis in Italy, a Grounded Theory study. Health & Social Care in the Community 29:4, pages 1083-1090.
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Meng‐Mei Yuan, Xi Peng, Tie‐Ying Zeng, Mei‐Li‐Yang Wu, Ye Chen, Ke Zhang & Xue‐Jun Wang. (2021) The illness experience for people with amyotrophic lateral sclerosis: A qualitative study. Journal of Clinical Nursing 30:9-10, pages 1455-1463.
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Chetna Malhotra, Filipinas Bundoc, Felicia Jia Ler Ang, Semra Ozdemir, Irene Teo, David Sim, Fazlur Rehman Jaufeerally, Than Aung & Eric Finkelstein. (2021) Financial difficulties and patient-reported outcomes among patients with advanced heart failure. Quality of Life Research 30:5, pages 1379-1387.
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Alona Amurao. (2020) MEDICAL ASSISTANCE IN DYING (MAID). Canadian Social Work Review 36:2, pages 143-164.
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Hikari Ando, Rosanna Cousins & Carolyn A Young. (2019) Exploring and Addressing ‘Concerns’ for Significant Others to Extend the Understanding of Quality of Life With Amyotrophic Lateral Sclerosis: A Qualitative Study. Journal of Central Nervous System Disease 11, pages 117957351985936.
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Geraldine Foley. (2016) Burdened by obligation: Recognising the caring roles of people with motor neurone disease. Palliative Medicine 30:10, pages 981-982.
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