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Review Article

A mapping review of international guidance on the management and care of amyotrophic lateral sclerosis (ALS)

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Pages 325-336 | Received 16 Nov 2015, Accepted 31 Jan 2016, Published online: 14 Apr 2016

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Louise Sofia Madsen, Jørgen Jeppesen & Charlotte Handberg. (2019) “Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation. Disability and Rehabilitation 41:12, pages 1410-1418.
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Andreas Funke, Susanne Spittel, Torsten Grehl, Julian Grosskreutz, Dagmar Kettemann, Susanne Petri, Ute Weyen, Patrick Weydt, Johannes Dorst, Albert C. Ludolph, Petra Baum, Moritz Oberstadt, Berit Jordan, Andreas Hermann, Joachim Wolf, Matthias Boentert, Bertram Walter, Nadine Gajewski, André Maier, Christoph Münch & Thomas Meyer. (2018) Provision of assistive technology devices among people with ALS in Germany: a platform-case management approach. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:5-6, pages 342-350.
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Articles from other publishers (11)

Sara Alquati, Luca Ghirotto, Ludovica De Panfilis, Cristina Autelitano, Elisabetta Bertocchi, Giovanna Artioli, Francesca Sireci, Silvia Tanzi & Simona Sacchi. (2022) Negotiating the Beginning of Care: A Grounded Theory Study of Health Services for Amyotrophic Lateral Sclerosis. Brain Sciences 12:12, pages 1623.
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Milica LAZOVIC, Dejan NIKOLIC, François C. BOYER, Kristian BORG, Maria G. CERAVOLO, Mauro ZAMPOLINI & Carlotte KIEKENS. (2022) Evidence-based position paper on Physical and Rehabilitation Medicine practice for people with amyotrophic lateral sclerosis. European Journal of Physical and Rehabilitation Medicine 58:2.
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Tine Gamskjaer, Ulla Werlauff & Charlotte Handberg. (2021) Investigating job satisfaction in palliative rehabilitation: Reflections and perspectives of health professionals working with amyotrophic lateral sclerosis. Journal of Evaluation in Clinical Practice 28:1, pages 108-119.
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Marie Kierkegaard, Kristina Gottberg, Sverker Johansson, Susanne Littorin, Petter Sandstedt, Charlotte Ytterberg & Lotta Widén Holmqvist. (2021) Healthcare Utilisation and Satisfaction with Care in Patients with Amyotrophic Lateral Sclerosis - An Observational Study. Journal of Neuromuscular Diseases 8:6, pages 1079-1088.
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Q. Wen, J. Ma, X. Pang, S. Huang, J. Zhang, J. Wang, X. Chang, J. Guo & W. Zhang. (2021) Diaphragm ultrasound in the diagnosis of respiratory dysfunction in patients with amyotrophic lateral sclerosis. Revue Neurologique 177:6, pages 639-646.
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Zeynep Tufekcioglu, Basar Bilgic, Hasmet Hanagasi & Murat Emre. 2021. Management of Patients with Dementia. Management of Patients with Dementia 201 227 .
Denise Epps, Justin Y. Kwan, James W. Russell, Talisa Thomas & Montserrat Diaz-Abad. (2020) Evaluation and Management of Dysphagia in Amyotrophic Lateral Sclerosis: A Survey of Speech-Language Pathologists' Clinical Practice. Journal of Clinical Neuromuscular Disease 21:3, pages 135-143.
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Ferdinando Sartucci, Alessio Pelagatti, Michela Santin, Tommaso Bocci, Cristina Dolciotti & Paolo Bongioanni. (2019) Diaphragm ultrasonography in amyotrophic lateral sclerosis: a diagnostic tool to assess ventilatory dysfunction and disease severity. Neurological Sciences 40:10, pages 2065-2071.
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Melanie Harris, Geoff Thomas, Mary Thomas, Paul Cafarella, Allegra Stocks, Julia Greig & R. Doug McEvoy. (2017) Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesis. Palliative and Supportive Care 16:2, pages 228-237.
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Yolanda Martínez-Campo, Christian Homedes, Ana Lazaro, Raquel Alarcón, David Campo, Mariona Riera, Raúl Domínguez, Mónica Povedano & Carlos Casasnovas. (2017) Observational study of patients in Spain with amyotrophic lateral sclerosis: correlations between clinical status, quality of life, and dignity. BMC Palliative Care 16:1.
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Juyeon Oh & Jung A Kim. (2017) Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. Journal of Clinical Nursing 26:23-24, pages 4129-4152.
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