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International Journal of Circumpolar Health Volume 71, 2012 - Issue S1: Special Issue on Participatory Research Processes and Ethics
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Special Issue on Participatory Research Processes and Ethics

Challenges created by data dissemination and access restrictions when attempting to address community concerns: individual privacy versus public wellbeing

Amy ColquhounDepartment of Public Health Sciences and Centre of Excellence in Gastrointestinal Inflammation and Immunity Research, University of Alberta, Edmonton, AB, Canada;Cancer Surveillance, Surveillance and Health Status Assessment, Alberta Health Services, Edmonton, AB, CanadaCorrespondence[email protected]
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Laura AplinDepartment of Public Health Sciences and Centre of Excellence in Gastrointestinal Inflammation and Immunity Research, University of Alberta, Edmonton, AB, Canada
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Janis GearyDepartment of Public Health Sciences and Centre of Excellence in Gastrointestinal Inflammation and Immunity Research, University of Alberta, Edmonton, AB, Canada
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Karen J. GoodmanDepartment of Public Health Sciences and Centre of Excellence in Gastrointestinal Inflammation and Immunity Research, University of Alberta, Edmonton, AB, Canada
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Juanita HatcherCancer Surveillance, Surveillance and Health Status Assessment, Alberta Health Services, Edmonton, AB, Canada
Article: 18414 | Received 04 Jul 2011, Accepted 30 Jan 2012, Published online: 08 May 2012

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Amy Colquhoun, Laura Aplin, Janis Geary, Karen J. Goodman & Juanita Hatcher. (2012) Challenges created by data dissemination and access restrictions when attempting to address community concerns: individual privacy versus public wellbeing. International Journal of Circumpolar Health 71:1.
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Manik Ahuja & Robert Aseltine Jr. (2021) Barriers to Dissemination of Local Health Data Faced by US State Agencies: Survey Study of Behavioral Risk Factor Surveillance System Coordinators. Journal of Medical Internet Research 23:7, pages e16750.
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Melina Arnold, Suzanne P Moore, Sven Hassler, Lis Ellison-Loschmann, David Forman & Freddie Bray. (2014) The burden of stomach cancer in indigenous populations: a systematic review and global assessment. Gut 63:1, pages 64-71.
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Michael Lesk. (2013) Electronic Medical Records: Confidentiality, Care, and Epidemiology. IEEE Security & Privacy 11:6, pages 19-24.
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