Citations (16)
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Giancarlo Castaman, Michiel Coppens & Steven W Pipe. (2023) Etranacogene dezaparvovec for the treatment of adult patients with severe and moderately severe hemophilia B. Expert Review of Hematology 0:0, pages 1-14.
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Sonia Brondi, Laura Palareti & Greta Mazzetti. (2021) Comprehensive care for haemophilia: A literature review for improving institutional cooperation. International Journal of Healthcare Management 14:2, pages 402-411.
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Tyler W Buckner, Robert Sidonio Jr, Michelle Witkop, Christine Guelcher, Susan Cutter, Neeraj N Iyer & David L Cooper. (2019) Correlations between patient-reported outcomes and self-reported characteristics in adults with hemophilia B and caregivers of children with hemophilia B: analysis of the B-HERO-S study. Patient Related Outcome Measures 10, pages 299-314.
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Silvia Potì, Laura Palareti, Frederica RMY Cassis & Sonia Brondi. (2019) Health care professionals dealing with hemophilia: insights from the international qualitative study of the HERO initiative. Journal of Multidisciplinary Healthcare 12, pages 361-375.
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Solfrid Sørgjerd Saltnes, Amy Østertun Geirdal, Rønnaug Saeves, Janicke Liaaen Jensen & Hilde Nordgarden. (2019) Experiences of daily life and oral rehabilitation in oligodontia – a qualitative study. Acta Odontologica Scandinavica 77:3, pages 197-204.
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Articles from other publishers (11)
Flávia Dufloth Chiaradia, Lara Richter, Letícia Tavares, Daiane Cobianchi da Costa, Edneia Casagranda Bueno & Alexandre Geraldo. (2022) Imunodeficiência de imunoglobulinas IgG subclasse 3. Serviço Social e Saúde 21:00, pages e022005.
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Yin Ting Cheung, Pok Hong Lam, Henry Hon Wai Lam, Chung-Tin Ma, Alex Wing Kwan Leung, Raymond Siu Ming Wong & Chi Kong Li. (2022) Treatment Adherence and Health-Related Quality of Life in Patients with Hemophilia in Hong Kong. International Journal of Environmental Research and Public Health 19:11, pages 6496.
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Victor Jiménez‐Yuste, Günter Auerswald, Gary Benson, Gerry Dolan, Cedric Hermans, Thierry Lambert, Rolf Ljung, Massimo Morfini, Elena Santagostino & Silva Zupančić Šalek. (2021) Practical considerations for nonfactor‐replacement therapies in the treatment of haemophilia with inhibitors. Haemophilia 27:3, pages 340-350.
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Anna-Lucia Koerling. (2020) No friends 1. Orphanet Journal of Rare Diseases 15:1.
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Sonia Brondi, Laura Palareti & Dina Guglielmi. (2020) Development of a Self-Assessment Tool for the Nontechnical Skills of Hemophilia Teams. Quality Management in Health Care 29:4, pages 194-200.
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Tania C. Vasquez-Loarte, Tiffany Lin Lucas, Julie Harris-Wai & Deborah J. Bowen. (2020) Beliefs and Values About Gene Therapy and In-Utero Gene Editing in Patients with Hemophilia and Their Relatives. The Patient - Patient-Centered Outcomes Research 13:5, pages 633-642.
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Kate Khair, Luke Pembroke & Deborah Christie. 2020. Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions. Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions
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Wenji Qian, Teddy Tai-Ning Lam, Henry Hon Wai Lam, Chi-Kong Li & Yin Ting Cheung. (2019) Telehealth Interventions for Improving Self-Management in Patients With Hemophilia: Scoping Review of Clinical Studies. Journal of Medical Internet Research 21:7, pages e12340.
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Gitte Lee Mortensen, Anne Mette Strand & Lisa Almén. (2018) Adherence to prophylactic haemophilic treatment in young patients transitioning to adult care: A qualitative review. Haemophilia 24:6, pages 862-872.
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Kate Khair, Steve Chaplin & Mike Holland. (2018) Living with an inhibitor: Results from the Study of Haemophilia Experiences, Results and Opportunities in Children and young adults with long-standing inhibitors (the SO-HEROIC study). The Journal of Haemophilia Practice 5:1, pages 24-34.
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Charlotte von der Lippe, Plata S. Diesen & Kristin B. Feragen. (2017) Living with a rare disorder: a systematic review of the qualitative literature. Molecular Genetics & Genomic Medicine 5:6, pages 758-773.
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