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Empirical Studies

Coping efforts and resilience among adult children who grew up with a parent with young-onset dementia: a qualitative follow-up study

(Associate Professor, Postdoctor) , (Professor) & (Professor)
Article: 30535 | Accepted 29 Jan 2016, Published online: 08 Apr 2016

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Read on this site (5)

A-S. Helvik, L. Hvidsten, K. Engedal, H. Kersten, M. C. N. Dourado & A. Johannessen. (2023) Living with young-onset dementia in the family – a mixed method study. Aging & Mental Health 0:0, pages 1-8.
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Kirsten Thorsen & Aud Johannessen. (2021) Metaphors for the Meaning of Caring for a Spouse with Dementia. Journal of Multidisciplinary Healthcare 14, pages 181-195.
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Lilian Hartman, Crispin Jenkinson & David Morley. (2020) Young People’s Response to Parental Neurological Disorder: A Structured Review. Adolescent Health, Medicine and Therapeutics 11, pages 39-51.
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Torhild Holthe, Rita Jentoft, Cathrine Arntzen & Kirsten Thorsen. (2018) Benefits and burdens: family caregivers’ experiences of assistive technology (AT) in everyday life with persons with young-onset dementia (YOD). Disability and Rehabilitation: Assistive Technology 13:8, pages 754-762.
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Articles from other publishers (11)

Haiyan Sun, Qian Qian, Yang Qin, Lingling Guo & Pornpat Hengudomsub. (2023) Dynamic changes in resilience among family caregivers in the face of healthcare challenges: A scoping review. Archives of Psychiatric Nursing 45, pages 113-123.
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Maddison Wiggins, Alison McEwen & Adrienne Sexton. (2023) Young-onset dementia: A systematic review of the psychological and social impact on relatives. Patient Education and Counseling 107, pages 107585.
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Hanne Groennestad & Wenche Malmedal. (2022) Having a Parent with Early-Onset Dementia: A Qualitative Study of Young Adult Children. Nursing Research and Practice 2022, pages 1-11.
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Silke Hoppe. (2021) Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction. Dementia 21:1, pages 196-213.
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Giovanni Ottoboni, Vasileios Stamou, Ilaria Chirico, Laura De Riso, Luisa Allione, Aud Johannessen & Rabih Chattat. (2021) Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals. Dementia 20:8, pages 2725-2745.
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Anna V Cartwright, Charlotte R Stoner, Richard D Pione & Aimee Spector. (2021) The experiences of those affected by parental young onset dementia: A qualitative systematic literature review. Dementia 20:7, pages 2618-2639.
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Ilaria Chirico, Giovanni Ottoboni, Marco Valente & Rabih Chattat. (2021) Children and young people's experience of parental dementia: A systematic review. International Journal of Geriatric Psychiatry 36:7, pages 975-992.
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Francesco Craig, Rosa Savino, Sara Scoditti, Elisabetta Lucarelli, Isabella Fanizza, Marta De Rinaldis, Leonarda Gennaro, Marta Simone, Luigi Russo & Antonio Trabacca. (2020) Coping, stress and negative psychological outcomes in parents of children admitted to a pediatric neurorehabilitation care unit. European Journal of Physical and Rehabilitation Medicine 55:6.
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M.C.N. Dourado, J. Laks, N.R. Kimura, M.A.T. Baptista, M.L. Barca, K. Engedal, B. Tveit & A. Johannessen. (2018) Young-onset Alzheimer dementia: a comparison of Brazilian and Norwegian carers' experiences and needs for assistance. International Journal of Geriatric Psychiatry 33:6, pages 824-831.
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Aud Johannessen, Anne-Sofie Helvik, Knut Engedal & Kirsten Thorsen. (2017) Experiences and needs of spouses of persons with young-onset frontotemporal lobe dementia during the progression of the disease. Scandinavian Journal of Caring Sciences 31:4, pages 779-788.
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Aud Johannessen, Knut Engedal & Kirsten Thorsen. (2016) Family Carers of People with Young-Onset Dementia: Their Experiences with the Supporter Service. Geriatrics 1:4, pages 28.
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