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Empirical Studies

What it means to be an adult child of a person with dementia

(PhD Student) , (Associate Professor) & (Professor)
Article: 21676 | Accepted 21 Sep 2013, Published online: 22 Oct 2013

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (3)

Kirsten Jæger Fjetland & Miroslava Tokovska. (2022) What characterizes studies on social support groups for next of kin of persons with dementia? A qualitative systematic review. Nordic Social Work Research 12:4, pages 464-479.
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Aud Johannessen, Knut Engedal & Kirsten Thorsen. (2016) Coping efforts and resilience among adult children who grew up with a parent with young-onset dementia: a qualitative follow-up study. International Journal of Qualitative Studies on Health and Well-being 11:1.
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Aud Johannessen, Knut Engedal & Kirsten Thorsen. (2015) Adult children of parents with young-onset dementia narrate the experiences of their youth through metaphors. Journal of Multidisciplinary Healthcare 8, pages 245-254.
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Articles from other publishers (21)

Markku Paanalahti, Margit Alt Murphy, Malin Holmström Rising & Eija Viitasara. (2023) Functioning and Disability in Community-Living People with Perceived Cognitive Impairment or Dementia: A Mixed Methods Study using the World Health Organization Disability Assessment Schedule. Journal of Rehabilitation Medicine 55, pages jrm00352.
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Sara Jiménez, Belén Bueno & Ana B. Navarro. (2021) Do the caregiving spouses of people with dementia in Spain perceive the same barriers for taking part in interventions as caregiving offspring?. Health & Social Care in the Community 30:5.
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Hanne Groennestad & Wenche Malmedal. (2022) Having a Parent with Early-Onset Dementia: A Qualitative Study of Young Adult Children. Nursing Research and Practice 2022, pages 1-11.
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Inbal Halevi Hochwald, Daniella Arieli, Zorian Radomyslsky, Yehuda Danon & Rachel Nissanholtz-Gannot. (2022) Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study. Dementia 21:4, pages 1154-1172.
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Emilie Wawrziczny, Pascal Antoine & Karyn Doba. (2021) Modeling the Distress of Adult-Child Caregivers of People with Dementia: The Mediating Role of Self-Efficacy. Journal of Alzheimer's Disease 84:2, pages 855-867.
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Christine DiLeone. (2021) Experiences of Daughters Caring for a Parent With Alzheimer's Disease Living at Home. Research in Gerontological Nursing 14:4, pages 191-199.
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Charles Scerri, Angela Abela & Anthony Scerri. 2021. Sex and Gender Differences in Alzheimer's Disease. Sex and Gender Differences in Alzheimer's Disease 361 391 .
Gilberto Sousa Alves, Maria Eduarda Casali, André Barciela Veras, Carolina Gomes Carrilho, Eriko Bruno Costa, Valeska Marinho Rodrigues & Marcia Cristina Nascimento Dourado. (2020) A Systematic Review of Home-Setting Psychoeducation Interventions for Behavioral Changes in Dementia: Some Lessons for the COVID-19 Pandemic and Post-Pandemic Assistance. Frontiers in Psychiatry 11.
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Lourett Smith, Dalena van Rooyen & David G Morton. (2018) Silent voices: Transition experiences of family members caring for relatives with dementia. Dementia 19:6, pages 2114-2127.
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Annica Lövenmark. (2019) How Children of Parents With Dementia Can Make Their Subject Positions Understandable and Meaningful. Qualitative Health Research 30:5, pages 704-716.
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S. Robertson, C. Cooper, J. Hoe, K. Lord, P. Rapaport, L. Marston, S. Cousins, C. G. Lyketsos & G. Livingston. (2019) Comparing proxy rated quality of life of people living with dementia in care homes. Psychological Medicine 50:1, pages 86-95.
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Melanie Deist & Abraham P. Greeff. 2020. Evidence-Informed Approaches for Managing Dementia Transitions. Evidence-Informed Approaches for Managing Dementia Transitions 137 166 .
Line Marie Thygesen & Pia Riis Olsen. (2019) At være – at være noget for nogen. Nordisk sygeplejeforskning 9:3, pages 213-219.
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Elaine Wan Ling Chan, Poh Sin Yap & Zahra Fazli Khalaf. (2019) Factors associated with high strain in caregivers of Alzheimer's disease (AD) in Malaysia. Geriatric Nursing 40:4, pages 380-385.
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Emma K Hooper & Tracy Collins. (2016) An occupational perspective of the lived experience of familial dementia caregivers: A thematic review of qualitative literature. Dementia 18:1, pages 323-346.
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Gemma Tatangelo, Marita McCabe, Ashley Macleod & Emily You. (2018) “I just don’t focus on my needs.” The unmet health needs of partner and offspring caregivers of people with dementia: A qualitative study. International Journal of Nursing Studies 77, pages 8-14.
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Linda Høgsnes, Karl-Gustaf Norbergh, Ella Danielson & Christina Melin-Johansson. (2016) The Shift in Existential Life Situations of Adult Children to Parents with Dementia Relocated to Nursing Homes. The Open Nursing Journal 10:1, pages 122-130.
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Annika Kjallman Alm, Per Hagglund, Norbergh Karl-Gustaf & Hellzen Ove. (2015) Sense of Coherence in Persons with Dementia and Their Next of Kin—A Mixed-Method Study. Open Journal of Nursing 05:05, pages 490-499.
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Maria Lage Barca, Kirsten Thorsen, Knut Engedal, Per Kristian Haugen & Aud Johannessen. (2014) Nobody asked me how I felt: experiences of adult children of persons with young-onset dementia. International Psychogeriatrics 26:12, pages 1935-1944.
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Allison Lindauer & Theresa A. Harvath. (2014) Pre-death grief in the context of dementia caregiving: a concept analysis. Journal of Advanced Nursing 70:10, pages 2196-2207.
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Annika Kjällman Alm, Ove Hellzen & Karl-Gustaf Norbergh. (2014) Experiences of Family Relationships When a Family Member Has Dementia. Open Journal of Nursing 04:07, pages 520-527.
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