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Clinical Features

Patients' Journeys to a Narcolepsy Diagnosis: A Physician Survey and Retrospective Chart Review

, PhD, , PhD & , MA

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Y Grace Wang, Khadra Benmedjahed, Jérémy Lambert, Christopher J Evans, Steve Hwang, Jed Black & Murray W Johns. (2017) Assessing narcolepsy with cataplexy in children and adolescents: development of a cataplexy diary and the ESS-CHAD. Nature and Science of Sleep 9, pages 201-211.
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Articles from other publishers (18)

Eric S. Zhou, Anna Revette, Gillian K. Heckler, Jennifer Worhach, Kiran Maski & Judith A. Owens. (2023) Building a deeper understanding of social relationship health in adolescents with narcolepsy disorder. Journal of Clinical Sleep Medicine 19:3, pages 491-498.
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Ulf Kallweit, Georg Nilius, Daniel Trümper, Tobias Vogelmann & Tino Schubert. (2022) Prevalence, incidence, and health care utilization of patients with narcolepsy: a population-representative study. Journal of Clinical Sleep Medicine 18:6, pages 1531-1537.
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Kiran Maski, Jennifer Worhach, Erin SteinhartMadeline BoduchAnne Marie Morse, Michael StruncThomas ScammellJudith OwensLindsay JesteadtClaire CrispDavid WilliamsGeorgios Sideridis. (2022) Development and Validation of the Pediatric Hypersomnolence Survey. Neurology 98:19.
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Jason C. Ong & Matthew D. Schuiling. 2022. Adapting Cognitive Behavioral Therapy for Insomnia. Adapting Cognitive Behavioral Therapy for Insomnia 115 133 .
Maurice M. Ohayon, Michael J. Thorpy, Ginger Carls, Jed Black, Miriam Cisternas, David J. Pasta, Shay Bujanover, Danielle Hyman & Kathleen F. Villa. (2021) The Nexus Narcolepsy Registry: methodology, study population characteristics, and patterns and predictors of narcolepsy diagnosis. Sleep Medicine 84, pages 405-414.
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Kiran Maski, Fabio Pizza, Shanshan Liu, Erin Steinhart, Elaina Little, Alicia Colclasure, Cecilia Diniz Behn, Stefano Vandi, Elena Antelmi, Edie Weller, Thomas E Scammell & Giuseppe Plazzi. (2020) Defining disrupted nighttime sleep and assessing its diagnostic utility for pediatric narcolepsy type 1. Sleep 43:10.
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Rakesh Bhattacharjee. 2020. Sleep Medicine and Mental Health. Sleep Medicine and Mental Health 169 188 .
Mei Ling Song, Keun Tae Kim, Gholam K. Motamedi & Yong Won Cho. (2019) The influential factor of narcolepsy on quality of life: compared to obstructive sleep apnea with somnolence or insomnia. Sleep and Biological Rhythms 17:4, pages 447-454.
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Hui Ouyang, Fang Han, Ze-Chen Zhou, Qi-Wen Zheng, Yang-Yang Wang & Jun Zhang. (2019) Relationship between T-cell receptor α gene polymorphisms and symptomatic differences in patients with narcolepsy type 1. Chinese Medical Journal 132:15, pages 1796-1801.
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Aljohara S. Almeneessier, Sara Al-Jebrin, Reem Labani, Hussain Alkaff, Omar Al-Rahbeeni, Musab Alageel, Awad Olaish & Ahmed S. BaHammam. (2019) Medical specialty visits and diagnoses received by Saudi patients prior to a diagnosis of narcolepsy. Sleep and Breathing 23:2, pages 603-609.
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L. Vignatelli, E. Antelmi, I. Ceretelli, M. Bellini, C. Carta, P. Cortelli, L. Ferini-Strambi, R. Ferri, R. Guerrini, F. Ingravallo, V. Marchiani, F. Mari, G. Pieroni, F. Pizza, M. C. Verga, E. Verrillo, D. Taruscio & Giuseppe Plazzi. (2018) Red Flags for early referral of people with symptoms suggestive of narcolepsy: a report from a national multidisciplinary panel. Neurological Sciences 40:3, pages 447-456.
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Jagriti Bhattarai & Scott W. Sumerall. (2018) Diagnostic Delay of Narcolepsy: Contributing Factors and Implications for Clinicians. Sleep and Vigilance 2:2, pages 103-109.
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Michael Thorpy & Anne Marie Morse. (2017) Reducing the Clinical and Socioeconomic Burden of Narcolepsy by Earlier Diagnosis and Effective Treatment. Sleep Medicine Clinics 12:1, pages 61-71.
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Jackie Bhattarai & Scott W. Sumerall. (2017) Current and future treatment options for narcolepsy: A review. Sleep Science.
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Raquel N. Taddei, Esther Werth, Rositsa Poryazova, Christian R. Baumann & Philipp O. Valko. (2016) Diagnostic delay in narcolepsy type 1: combining the patients' and the doctors' perspectives. Journal of Sleep Research 25:6, pages 709-715.
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Jiwon Lee, 이지훈, Yoojin Park & 주은연. (2016) Clinical and Polysomnographic Characteristics of Childhood Narcolepsy in Korea. Journal of the korean child neurology society 24:3, pages 136-142.
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Michael J. Thorpy. (2015) Update on Therapy for Narcolepsy. Current Treatment Options in Neurology 17:5.
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Michael J. Thorpy & Yves Dauvilliers. (2015) Clinical and practical considerations in the pharmacologic management of narcolepsy. Sleep Medicine 16:1, pages 9-18.
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