Review of European registries for psoriasis

Abstract

Background: Patient registries are databases that contain clinical data for patients with a specific disease or medical condition.

Objective: The purpose was to identify psoriasis registries in Europe and examine their characteristics and implications.

Methods: We searched Google, the Registry of Patient Registries, and ClinicalTrials.gov to generate a list of European psoriasis registries. We also conducted a literature review for publications related to the psoriasis registries in Europe using PubMed.

Results: We identified 13 psoriasis patient registries in Europe.

Conclusions: Patient registries are routinely used in dermatology and psoriasis registries offer pertinent long-term safety information regarding conventional systemic therapies and biologic agents for psoriasis.

KEYWORDS:

• Psoriasis
• patient registries
• registry trials
• Europe
• post-marketing surveillance

Disclosure statement

Dr. Amin and Ms. Lee report no potential conflicts of interest. Dr. Bhutani is an investigator for Janssen, Merck, Lilly, and Strata Skin Sciences. Dr. Wu is an investigator for AbbVie, Amgen, Eli Lilly, Janssen, Novartis, and Regeneron.