Patients’ needs during a surgical intervention process for Dupuytren’s disease

Abstract

Purpose: To explore and describe clients’ needs during a surgical intervention process for Dupuytren’s disease.

Materials and methods: Design: Interview study with 21 men undergoing surgical intervention for Dupuytren’s disease. Qualitative content analysis was performed with the model of Patient Evaluation Process as a theoretical framework.

Results: The primary reason for seeking medical care was to receive an intervention to improve hand function. The need for knowledge was evident during the care process, and was connected to involvement in decision-making. During surgery and rehabilitation, participants needed support with pain relief, a sense of security, support for self-care, or sick leave. There was also a need for participation in the evaluation and improvement of care. Clients’ life situations contributed to the occurrence of needs or were a resource for handling them. Depending on patient character, clients handled their perceived needs differently.

Conclusions: Clients’ needs during a surgical intervention process include needs for improvement of hand function, knowledge, and support during treatment, and participation in evaluation. Clients’ needs change during the care process and can be influenced by their life situation or their character. The identified needs ought to be included in quality assessments from the carers’ perspective, to ensure that important needs of the clients are met by the surgical intervention process. Communication and interaction between client and health care provider is a key aspect of fulfilling clients’ needs.

Implications for rehabilitation

• Patients have need for knowledge throughout the care process: about the disease, risk factors, treatment options, practical and medical information related to the treatment and recovery, and about the care process as a whole.

• Need for knowledge is closely connected to patients’ experience of being involved in decision making.

• Patients need support with both general human and specific medical issues during surgery and rehabilitation.

• Patients’ needs change during the care process and can be influenced by the patient’s life situation or character.

• From the carers’ perspective, the identified needs ought to be included in quality assessments to ensure that important needs of the clients are met by the surgical intervention process.

Keywords:

• Hand surgery
• occupational therapy
• hand function
• qualitative interviews
• care process
• information

Acknowledgements

The authors thank the Department of Hand Surgery in Malmö, Sweden for practical support.

Disclosure statement

The authors report no conflicts of interest. The study was supported by grants from the County council of Östergötland, Sweden.