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Disability and Rehabilitation Volume 42, 2020 - Issue 15
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Research Papers

Consensus-Building efforts to identify best tools for screening and assessment for supportive services in oncology

Timothy F. MarshallSchool of Physical Therapy, Kean University, Union, NJ, USA; Correspondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-6040-749X
ORCID Icon,
Catherine M. AlfanoAmerican Cancer Society, Inc, Atlanta, GA, USA;
,
Alix G. SleightNational Cancer Institute, Rockville, MD, USA; ORCID Iconhttp://orcid.org/0000-0001-5317-060X
ORCID Icon,
Richard P. MoserNational Cancer Institute, Rockville, MD, USA;
,
David S. ZuckerSwedish Cancer Institute, Seattle, WA, USA;
,
Elise L. RiceNational Cancer Institute, Rockville, MD, USA; ORCID Iconhttp://orcid.org/0000-0001-9665-0216
ORCID Icon,
Julie K. SilverDepartment of Physical Medicine & Rehabilitation, Harvard Medical School and Spaulding Rehabilitation Hospital, Boston, MA, USA; ORCID Iconhttp://orcid.org/0000-0001-9711-0713
ORCID Icon,
Vishwa S. RajDepartment of Physical Medicine & Rehabilitation, Carolinas Rehabilitation; Department of Supportive Care, Levine Cancer Institute, Charlotte, NC, USA;
,
Jack B. FuDepartment of Palliative Rehabilitation & Integrative Medicine, University of Texas MD Anderson Cancer Center, Houston, TX, USA; ORCID Iconhttp://orcid.org/0000-0002-9397-0668
ORCID Icon,
Lynne S. PadgettWashington DC Veterans Affairs Medical Center, Washington, DC, USA;
,
Kathleen Doyle LyonsNorris Cotton Cancer Center, Dartmouth-Hitchcock Medical Center, Lebanon, NH, USA; ORCID Iconhttp://orcid.org/0000-0002-8895-4612
ORCID Icon,
Mary Vining RadomskiCourage Kenny Research Center, Minneapolis, MN, USA; ORCID Iconhttp://orcid.org/0000-0003-0600-4494
ORCID Icon,
Raymond McKennaDepartment of Physical Therapy, Stony Brook University, Stony Brook, NY, USA;
&
Mackenzi PergolottiReVital Cancer Rehabilitation, Select Medical, Mechanicsburg, PA, USA; ;Department of Occupational Therapy, Colorado State University, Fort Collins, CO; Division of Occupational Science and Therapy, School of Medicine, University of North Carolina at Chapel Hill, NCORCID Iconhttp://orcid.org/0000-0001-6493-6965
ORCID Icon show all
Pages 2178-2185 | Received 03 Aug 2018, Accepted 30 Nov 2018, Published online: 19 Feb 2019
 
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Abstract

Purpose: To build consensus around an optimal patient-reported outcome measure of cancer symptoms and patient needs to facilitate patient-provider communication and trigger referrals to supportive services.

Methods and materials: The Grid-Enabled Measures platform was used to crowdsource and facilitate collaboration to achieve consensus. Respondents were invited to nominate and independently rate the usefulness of measures that: (1) have been actively used at a healthcare institution, (2) have a multiple choice or yes/no type format, (3) are applicable to adults with cancer, (4) are patient-reported, and 5) have psychometric data if possible. Discussion boards within the GEM workspace allowed respondents to identify barriers to implementing patient assessment and referral systems.

Results: 166 individuals from various disciplines from 25 organizations participated. Six instruments were nominated, and 553 rating surveys were submitted. The three most highly-rated overall instruments were the Distress Thermometer, the James Supportive Case Screening, and the Functional Assessment of Cancer Therapy-General. Participants noted that wide-scale implementation of this process requires both identifying problems and providing clinicians with algorithms to facilitate appropriate referrals.

Conclusions: Consensus reported three most highly-related measures as optimal for comprehensive screening and identification for referral by assessing multiple domains of functioning and quality of life.

    Implications for Rehabilitation

  • Gaining consensus on the best patient reported outcome measures is an important step towards improving access to cancer rehabilitation services.

  • A consensus agreed on several measures to use for cancer rehabilitation screening. Functional Assessment of Cancer Therapy-General, National Comprehensive Cancer. Network Distress Thermometer and the James Instrument.

  • The selected measures do not put undue burden on clinicians and patients.

Disclosure statement

No potential conflict of interest was reported by the authors.

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