The value of social networks to individuals with a severe traumatic brain injury: a mixed methods approach

Abstract

Purpose

In this study, we investigate the nature and strength of the social relations of working-age individuals who have survived a severe traumatic brain injury.

Materials and methods

Fifty-three survivors diagnosed with severe traumatic brain injury completed the social network analysis questionnaire, enabling us to map their social networks using the software program EgoNet.QF. This was combined with interviews with four survivors and their significant members of their network and constructed narrative cases of the resources gained from their network.

Results

Half the survivors lost friends because of the brain injury. The most common social network post injury comprised parents followed by spouses. Close relatives experienced a dramatic change in the nature of their relationships with the survivor. They also struggled greatly with the rehabilitation health system, which in many cases affected their own careers.

Conclusion

Persons with severe traumatic brain injury and their close relatives predominantly learn to manage the new situation, with functionality driving social interaction. However, as social networks often are limited to the close family, these individuals are placed in a vulnerable position.

IMPLICATIONS FOR REHABILITATION

• Existing networks (whether few or many) are of major importance for individuals with traumatic brain injury in the rehabilitation process.

• Close social relations possess knowledge about the survivor with traumatic brain injury that is important for the rehabilitation process.

• To support individuals and their families who lack strong resources and social networks, health care professionals should systematically identify these persons from admission to hospital and primary care.

• When these persons have been identified, individual plans for how to strengthen their network can be developed in collaboration with the individuals and their existing social network.

Keywords:

• Social network analysis
• case study design
• traumatic brain injury
• experiences of care
• inequality in health

Correction Statement

This article has been corrected with minor changes. These changes do not impact the academic content of the article.

Disclosure statement

No potential conflict of interest was reported by the author(s).