Coping and wellbeing in families with a child with acquired brain injury compared with families in the community

Abstract

Purpose

Paediatric acquired brain injury (ABI) negatively impacts parental wellbeing and family functioning. Adaptive coping, that is behaviours promoting emotional wellbeing and addressing distressing problems, may support wellbeing and family functioning. This study compared wellbeing, coping, and family functioning between parents of a child with ABI and parents in the community, and examined coping as a predictor of wellbeing and family functioning.

Methods

Forty parents of a child with ABI and 40 parents in the community participated in this cross-sectional survey using the Personal Wellbeing Index, Coping Scale for Adults Short Form, McMaster Family Assessment Device (General Functioning Subscale).

Results

The ABI group had statistically significantly lower wellbeing, t(68.70) = −4.01, p < 0.001, lower adaptive coping, t(73.95) = −3.27, p = 0.002, and poorer family functioning, t(77) = 4.26, p < 0.001. Family composition (single-parent/couple), having a child with ABI, adaptive coping, and non-productive coping predicted 47.7% of the variance in wellbeing, F(5, 70) = 12.75, p < 0.001. Parental education, having a child with ABI, and non-productive coping predicted 35.9% of the variance in family functioning, F(5, 69) = 7.71, p < 0.001.

Conclusions

Adaptive coping may contribute to better family outcomes in paediatric ABI.

Implications for rehabilitation

• Paediatric ABI may have a significant impact on the child with ABI and the family, leading to poorer outcomes for some families.

• This study suggested that parents of a child with ABI use adaptive coping less than parents in the community but do not differ in the use of non-productive coping.

• Families need long-term targeted support to meet the challenges paediatric ABI presents and may benefit from interventions which actively seek to change parental coping strategies.

Keywords:

• Acquired brain injury
• coping
• parental wellbeing
• family functioning
• paediatric

Acknowledgements

Thank you to Heads Together for ABI, Hemispherectomy Foundation Australia, and the Victorian Paediatric Rehabilitation Service, Monash Health for their support.

Disclosure statement

The authors have no conflict of interest to disclose.

Additional information

Funding

This work was supported by an Australian Government Research Training Program (RTP) Scholarship to PA.