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Abstract
The French collaborative research platform Seintinelles was developed out of a desire to promote health democracy. The objective of the present study was to understand the profile of men registered on the platform from the point of view of their socio-demographic and psychosocial characteristics, as well as their motivations for registering. The present study analyzed data collected in the Seintinelles 2018 Barometer study. A total of 5707 individuals, including 366 men completed the questionnaire. On average, men registered on the platform were older than women (mean age men = 42.4 years; mean age women = 40.1 years; p = .003) and less likely to currently have or previously had cancer (20.8 vs. 32.8%; p = .000). In terms of motivation to register, men were more likely to register because someone advised them to (5.7 vs. 3.2% of women, p = .01). Finally, women, more than men, appeared to want to see a greater number of new research studies implemented. Men—more than women—become volunteers to participate in research on the collaborative research platform Seintinelles to support a loved one.
Acknowledgments
The authors would like to thank Lauriane Bassoleil, Laura Sablone, Guillemette Jacob, and Fabien Reyal of the Seintinelles collaborative research platform team to have constructed the questionnaire and collected data of the Barometer Seintinelles 2018 study.
Disclosure statement
None to declare.
Additional information
Notes on contributors
Charlotte Bauquier
Charlotte Bauquier (Post-doctoral fellow) carries out research in social psychology in the field of prevention and health education, with an interest in questions related to the sex and gender of individuals. She is heavily invested in promoting citizen participation in cancer research, in particular via online tools.
Myriam Pannard
Myriam Pannard (Lecturer), has oriented his research work in social psychology in a critical perspective of the issues of existing powers in the field of health, more particularly in the field of oncology. She is heavily invested in promoting citizen participation in cancer research, in particular via online tools.
Marie Préau
Marie Préau (Professor) is a specialist in based-participatory and community research, with wide experience in the field of HIV / AIDS. Her work in social psychology, is developed with the desire to be “socially” useful. She is heavily invested in promoting citizen participation in cancer research, in particular via online tools.