Analysis of Informative Content on Cystic Fibrosis Presented in Youtube Videos in English and Portuguese

Abstract

This study investigated the quality of the first 50 videos on cystic fibrosis (CF) in English and Portuguese using the DISCERN and JAMA scales. We selected 38 videos in Portuguese and 46 videos in English. In both languages, the origin of the video was from channels of people who have CF. The general quality of CF videos, assessed by the DISCERN scale, was mostly low; and according to the JAMA scale, the score was above average. Videos produced by “health professionals” received the highest ratings on both scales (DISCERN and JAMA), which could be useful for patients and healthcare professionals.

Keywords:

• Communication in health
• cystic fibrosis
• patient education
• social media
• Youtube

Acknowledgments

We are immensely grateful to CAPES and FAPEMIG who provided technical support for the development and implementation of this study.

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Notes on contributors

Diêgo Mendes Xavier

Diêgo Mendes Xavier, PhD student in the Department of Physiotherapy and Postgraduate Program in Rehabilitation and Functional Performance at the Federal University of Vales do Jequitinhonha and Mucuri, Diamantina, Brazil.

Gabriella Souza Pereira

Gabriella Souza Pereira, postgraduate in Hospital Physiotherapy, with an emphasis on Intensive Care, at the Faculdade Ciências Médicas, Belo Horizonte, Brazil.

Vanessa Pereira Lima

Vanessa Pereira Lima, PT, PhD, is at the Department of Physiotherapy and Postgraduate Program in Rehabilitation and Functional Performance at Federal University of Vales do Jequitinhonha and Mucuri, Diamantina.