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Disclosure statement
No potential conflict of interest was reported by the author(s).
Notes
1 This letter is dedicated to Michael Seres, a true patient leader and innovator.
Additional information
Notes on contributors
Mark Duman
Mark Duman, MRPharmS, brings over 30 years of clinician, management consultant and patient perspectives to the healthcare and life sciences sectors. He works with organizations, such as AstraZeneca, Diabetes UK, Google Health, JnJ, Macmillan Cancer Support, Microsoft, the United Kingdom National Health Service (NHS) and Novartis to improve patient engagement, harness digital health and develop markets. Mark serves on the editorial board of the Journal of Communication in Healthcare: Strategies, Media and Engagement in Global Health.
Lara Bloom
Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, chronic and invisible diseases, specializing in the Ehlers-Danlos syndromes, hypermobility spectrum disorders (HSD) and related disorders, and is a Professor of Practice in Patient Engagement and Global Collaboration at Penn State College of Medicine.