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Journal of Psychosocial Oncology Volume 34, 2016 - Issue 5
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Articles

Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis

Sarah J. EllisBehavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia;Discipline of Paediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Kensington, AustraliaCorrespondence[email protected]
, BA Psych (Hons), B Health,
Claire E. WakefieldBehavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia;Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia
, PhD,
Jordana K. McLooneBehavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia;Discipline of Paediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Kensington, Australia
, PhD,
Eden G. RobertsonBehavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia;Discipline of Paediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Kensington, Australia
, B Psych (Hons) &
Richard J. CohnBehavioural Sciences Unit proudly supported by the Kids with Cancer Foundation, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia;Discipline of Paediatrics, School of Women's and Children's Health, UNSW Medicine, University of New South Wales, Kensington, Australia;Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia
, MBBS, FRACP
Pages 347-362 | Published online: 13 Aug 2016
 
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ABSTRACT

Cancer diagnoses and treatment may have long-term effects on fertility. Semistructured interviews were administered to young cancer survivors (<20 years) and their parents (n = 97). Fertility related concerns were reported by 45 participants (46.4%). Themes included: distress regarding potential infertility; the effect of infertility on future relationships, self-esteem, and miscommunications/confusion about fertility status; access to fertility testing; and preservation options. Parents also reported challenges regarding how and when it was developmentally appropriate to talk to their children about fertility. The development of comprehensive consumer-driven approaches to managing the fertility concerns of young survivors and their families is essential.

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