Changes in Parental Self-Identity Following the Death of a Child to Cancer

Abstract

This study explored parental self-identity at 6, 12, and 18 months following the death of a child to cancer. Semi-structured interviews were analyzed using qualitative methodology. Two patterns of parental self-identity emerged: identity reintegration, characterized by 6 associated themes (e.g., positive reframing, focusing on surviving children); and identity disintegration, characterized by 7 associated themes (e.g., negative perceptions of social support, self-destructive thoughts and behaviors). Patterns were stable from 6 to 12 months, but a shift towards identity disintegration was observed at 18 months. These findings suggest a need to support bereaved parents’ well-being beyond the first year post-death.

Acknowledgments

We would like to acknowledge colleagues and Clinical Research Assistants who assisted with the early work for the larger study and, most importantly, the parents who so generously shared their stories during this difficult time in their lives.