Patients and family attitudes about clinical and research sharing of electronic clinical data

Figures & data

Table 1. Baseline characteristics of the study group (N = 108).

Characteristic		N (%)
Age	0–15	1 (1)
	16–24	3 (3)
	25–34	18 (27)
	35–44	42 (39)
	45–54	35 (32)
	55–64	6 (5)
	65–74	3 (3)
Gender	Female	78 (72)
	Male	29 (27)
	Other	1 (1)
Employment	Employed	71 (66)
	Unemployed	37 (34)
Education level	University, over 4 years	33 (31)
	University, below 4 years	26 (24)
	Non-University	49 (45)
Ancestry, Norwegian	Yes	99 (92)
	Other	9 (8)
Residency, Trøndelag or Møre and Romsdal	Yes	107 (99)
	No	1 (1)
Member of a user organization, years	Less than 1	39 (36)
	1–2	24 (22)
	3–5	21 (20)
	6–10	11 (10)
	More than 10	13 (10)

Table 2. Participants’ expectations towards the Health Platform.

The Health Platform can:	Agree %	Disagree %	Don’t know %
1. Improve cooperation between municipal health services and the BUP specialist health service	54	21	25
2. Increase the quality of BUP in the specialist health services	47	22	31
3. Reduce the quality of BUP in the specialist health services	38	24	38
4. Make it easier for patients to get access to/help at BUP in the specialist health services	25	30	45
5. Make it easier for patients to access their own records in BUP in the specialist health services	47	18	35
6. Increase the ability of users/patients to communicate with BUP in the specialist health services	34	24	42
7. Increase user satisfaction with BUP in the specialist health services	31	29	40
8. Make it possible to use decision support systems for BUP in the specialist health services	25	15	60
9. Contribute to shorter waiting times for services in the specialist health services	19	45	36

Note: BUP - child- and adolescent psychiatric service.

Figure 1. Factors that have influenced participants’ view of the health platform.

Data availability statement

Requests to access the datasets should be directed to Professor Norbert Skokauskas.