“He was no longer listening to me”: A qualitative study in six Sub-Saharan African countries exploring next-of-kin perspectives on caring following the death of a relative from AIDS

Figures & data

Table 1. Characteristics of the care-givers.

Characteristics	n (%)
Sex
Male	14 (32%)
Female	30 (68%)
Age
Average male	49 years old
Average female	50 years old
Overall average	50 years old
Age range	20–79 years old
Occupation
Formal employment	3 (9%)
Informal activities	41 (91%)
Relation to deceased
Father	2 (5%)
Mother	3 (7%)
Cousin	1 (2%)
Son	8 (18%)
Daughter	3 (7%)
In-law	3 (7%)
Brother	8 (18%)
Sister	5 (11%)
Husband	2 (5%)
Wife	4 (9%)
Other relatives	5 (11%)
Sampling site
Rakai (Uganda)	8 (18%)
Kyamulibwa (Uganda)	5 (11%)
Kisumu (Kenya)	11(25%)
Kisesa (Tanzania)	5 (11%)
Karonga (Malawi)	6 (14%)
��Manicaland (Zimbabwe)	3 (7%)
uMkhanyakude (South Africa)	6 (14%)

Table 2 . Characteristics of the deceased.

Characteristics	n (%)
Sex
Male	27 (61%)
Female	17 (39%)
Age
<40	12 (27%)
40+	12 (27%)
Unknown	9 (20%)
Location when care-giver first recalled relative was sick.
Same/nearby village	19 (43%)
Far from home	18 (41%)
Different country	3 (7%)
Unspecified	13 (30%)
ART status
Had never initiated ART	2 (9%)
Had initiated ART	30 (66%)
Unclear as to whether had initiated ART	1 (0.2%)

Figure 1. Ethics of caregiving model as it relates to support of and acceptance of support by PLHIV A balanced model of care b. an example of a non-balanced model