Development of the MobQoL patient reported outcome measure for mobility-related quality of life

Figures & data

Table 1. Demographic details for participants included in the study.

Age
N (%)
18–24 years	7 (18.9)
25–34 years	6 (16.2)
35–44 years	3 (8.1)
45–54 years	4 (10.8)
55–64 years	13 (35.1)
65–74 years	3 (8.1)
75+ years	1 (2.7)
Gender
Female	20 (54.1)
Male	17 (45.9)
Employment status
Full-time	2 (5.4)
Part-time	3 (8.1)
Unemployed	5 (13.5)
Student	4 (10.8)
Full-time parent/carer	2 (5.4)
Long-term sick leave	8 (21.6)
Retired	12 (32.4)
Did not answer	1 (2.7)
Primary reason for impaired mobility
Cerebral palsy	6 (16.2)
Multiple sclerosis	5 (13.5)
Arthritic condition^b	5 (13.5)
Musculoskeletal injury^c	4 (10.8)
Spine or brain injury^d	3 (8.1)
Myalgic encephalomyelitis	2 (5.4)
Other^e	11 (29.7)
No mobility impairment	1 (2.7)
Primary mobility aid^a
PWC	11 (32.4)
MWC	11 (32.4)
Walking stick/crutches	5 (14.7)
Mobility scooter	3 (8.8)
Other^f	4 (11.8)
Frequency of mobility aid use^a
A little of the time	5 (14.7)
Some of the time	4 (11.8)
Most of the time	7 (20.6)
All of the time	17 (50.0)

^a Sub-sample of individuals who use assistive mobility technology.

^b Osteoarthritis n = 3; psoriatic arthritis n = 1; rheumatoid arthritis n = 1.

^c Osteochondral fracture, dislocated knee, broken ankle, fractured hip (n = 1 for all).

^d Spinal injury n = 2; traumatic brain injury n = 1.

^e Parkinson’s disease, stroke, spina bifida, polymyositis, muscular dystrophy, generalised hypermobility spectrum disorder, Arnold–Chiari malformation, cerebellar ataxia, fallen arches, fibromyalgia, and small fibre neuropathy (n = 1 for all).

^f White cane, ankle/knee supports, walking frame, orthotic insoles (n = 1 for all).

Table 2. Dimensions of mobility-related quality of life and their sub-themes.

Dimensions	Sub-theme
Accessibility	Accessibility at home
	Accessibility in wider community
Safety	Risk of injury
	Steadiness
	Balance
	Fear of falling
Relationships	Friendship
	Family
	Love
	Peer support
	Feeling like a burden
Social inclusion	Feeling accepted by society
	Experience of prejudice and discrimination
Participation	Activities
	Fun and enjoyment
	Socialising
	Achievement
	Contribution
	Feeling useful
	Fulfilling roles
Personal care	Personal hygiene and toileting
	Eating and drinking
	Dignity
	Accepting support and care
Pain and discomfort	Physical pain
	Posture and discomfort
	Pain from injury
Independence	Control
	Freedom
	Self-reliance
	Autonomy
Energy	Stamina
	Fatigue
	Quality of sleep
	Concentration and focus
	Motivation
Self-esteem	Confidence
	Self-worth
	Identity
	Coming to terms with mobility changes
	Assistive mobility technology a negative symbol of disability
Mental wellbeing	Sadness and depression
	Frustration
	Resentment
	Anxiety and worry
	Hypervigilance