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Disability & Society Volume 37, 2022 - Issue 7
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‘… they had interpreted “disability” as referring to a patently visible disability’: experience of a patient group with NICE

Jasmin Barman-AksözenInternational Porphyria Patient Network, Zurich, SwitzerlandCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0001-7272-8824
ORCID Icon,
Francesca GranataInternational Porphyria Patient Network, Zurich, SwitzerlandORCID Iconhttps://orcid.org/0000-0002-1115-3374
ORCID Icon,
Mehmet Hakan AksözenInternational Porphyria Patient Network, Zurich, SwitzerlandORCID Iconhttps://orcid.org/0000-0002-9434-6023
ORCID Icon,
Cornelia DechantInternational Porphyria Patient Network, Zurich, SwitzerlandORCID Iconhttps://orcid.org/0000-0003-1442-3824
ORCID Icon &
Rocco FalchettoInternational Porphyria Patient Network, Zurich, SwitzerlandORCID Iconhttps://orcid.org/0000-0003-3524-2141
ORCID Icon
Pages 1239-1245 | Received 21 Jul 2021, Accepted 15 Feb 2022, Published online: 04 May 2022

Figures & data

Figure 1. Annual costs per person of Highly Specialised Technologies recommended for funding, and afamelanotide (ID927).

Figure 1. Annual costs per person of Highly Specialised Technologies recommended for funding, and afamelanotide (ID927).

Figure 2. Upheld appeals at NICE, Highly Specialised Technology Programme and Single Technology Assessment Programme, until December 2020.

Figure 2. Upheld appeals at NICE, Highly Specialised Technology Programme and Single Technology Assessment Programme, until December 2020.

Data availability

The dataset(s) supporting the conclusions of this article are available upon request from the corresponding author.

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