Figures & data
Figure 1. A road map for collaborative care in hemophilia summarizing the SHIELD recommendations, potential outcomes and examples of how resources and best practice can contribute within a themed framework.
Hematology
Volume 24, 2019 - Issue 1
Articles
Common themes and challenges in hemophilia care: a multinational perspective
J. StoffmanDepartment of Pediatrics and Child Health, University of Manitoba, Winnipeg, CanadaCorrespondence[email protected]
https://orcid.org/0000-0002-2096-8671
https://orcid.org/0000-0002-2096-8671, N. G. AnderssonDepartment for Thrombosis and Haemostasis Hematology, Skåne University Hospital, Scania, Swedenhttps://orcid.org/0000-0001-6058-8350
https://orcid.org/0000-0001-6058-8350, B. BranchfordSchool of Medicine Research Complex 1, University of Colorado, Aurora, CO, USAhttps://orcid.org/0000-0002-4076-270X
https://orcid.org/0000-0002-4076-270X, , R. D’OironCentre de Traitement de l’Hémophilie et Maladies Hémorragiques Constitutionnelles Rares, Hôpitaux Universitaires Paris Sud - Hôpital Bicêtre, Le Kremlin-Bicêtre Cedex, Francehttps://orcid.org/0000-0002-4843-7805
https://orcid.org/0000-0002-4843-7805, , , , K. KavakliDepartment of Hematology, Ege University Children’s Hospital, Izmir, Turkeyhttps://orcid.org/0000-0003-1174-1958
https://orcid.org/0000-0003-1174-1958, M. E. MancusoAngelo Bianchi Bonomi Haemophilia and Thrombosis Centre, University of Milan, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico and University of Milan, Milan, Italyhttps://orcid.org/0000-0002-7113-4028
https://orcid.org/0000-0002-7113-4028, , & show allRelated Research Data
Rapid musculoskeletal ultrasound for painful episodes in adult haemophilia patients
Source:
Wiley-Blackwell
Episodic replacement of clotting factor concentrates does not prevent bleeding or musculoskeletal damage - the MUSFIH study
Source:
Wiley-Blackwell
The Efficacy of Recombinant FVIII Low-Dose Prophylaxis in Chinese Pediatric Patients With Severe Hemophilia A: A Retrospective Analysis From the ReCARE Study
Source:
SAGE Publications
Evidence-based guidelines support integrated disease management as the optimal model of haemophilia care
Source:
Wiley-Blackwell
Point of care ultrasonography in haemophilia care: recommendations for training and competency evaluation
Source:
Wiley-Blackwell
Assessments of outcome in haemophilia - a patient perspective
Source:
Wiley-Blackwell
Biomechanics of lower limb haemophilic arthropathy
Source:
Elsevier BV
European principles of haemophilia care
Source:
Wiley-Blackwell
Recombinant factor VIII products and inhibitor development in previously untreated boys with severe hemophilia A
Source:
American Society of Hematology
Strategies to encourage physical activity in patients with hemophilia to improve quality of life
Source:
Dove Medical Press Ltd.
NHF-McMaster Guideline on Care Models for Haemophilia Management
Source:
Wiley-Blackwell
From treatment to prevention of bleeds: what more evidence do we need?
Source:
Wiley-Blackwell
Age at first joint bleed and bleeding severity in boys with severe hemophilia A: Canadian Hemophilia Primary Prophylaxis Study
Source:
Wiley-Blackwell
Physical activity in individuals with haemophilia and experience with recombinant factor VIII Fc fusion protein and recombinant factor IX Fc fusion protein for the treatment of active patients
Source:
Ovid Technologies (Wolters Kluwer Health)
Guidelines for the management of hemophilia
Source:
Wiley-Blackwell
The Path to Personalized Medicine
Source:
Massachusetts Medical Society
Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia.
Source:
Massachusetts Medical Society
The benefit of low dose prophylaxis in the treatment of hemophilia: a focus on China
Source:
Informa UK Limited
A prospective study of health-related quality of life of boys with severe haemophilia A in China: comparing on-demand to prophylaxis treatment
Source:
Wiley-Blackwell
LOW DOSE SECONDARY PROPHYLAXIS IN HAEMOPHILIA
Source:
Wiley
Practical considerations in choosing a factor VIII prophylaxis regimen: Role of clinical phenotype and trough levels
Source:
Georg Thieme Verlag KG
Penny wise, pound foolish: an assessment of Canadian Hemophilia/inherited bleeding disorder comprehensive care program services and resources
Source:
Wiley-Blackwell
Guidelines for the management of acute joint bleeds and chronic synovitis in haemophilia
Source:
Wiley-Blackwell
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