Development of Emotional Well-Being indicators to advance the quality of spinal cord injury rehabilitation: SCI-High Project

Sander L. HitzigSt. John’s Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, ON, Canada;Department of Occupational Science & Occupational Therapy, Faculty of Medicine, University of Toronto, Toronto, ON, Canada;Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, ON, Canada

https://orcid.org/0000-0002-9139-9250 View further author information

Rebecca TitmanDivision of Physical Therapy and Rehabilitation, Department of Medicine, University of Toronto, Toronto, ON, Canada

https://orcid.org/0000-0001-9950-744X View further author information

Steven OrenczukParkwood Institute Research, St. Joseph’s Health Care, London, ON, Canada;Spinal Cord Injury Alberta, Edmonton, CanadaView further author information

Teren ClarkeSpinal Cord Injury Alberta, Edmonton, CanadaView further author information

Heather FlettBrain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, Canada;Department of Physical Therapy, Faculty of Medicine, University of Toronto, Toronto, ON, Canada

https://orcid.org/0000-0001-9444-8006 View further author information

Vanessa K. NoonanRick Hansen Institute, Vancouver, BC, Canada;Blusson Spinal Cord Centre, Vancouver, BC, Canada

https://orcid.org/0000-0003-3226-9218 View further author information

Patricia BainBrain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, CanadaView further author information

Sandra MillsBrain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, CanadaView further author information

Farnoosh FarahaniKITE, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, Canada

https://orcid.org/0000-0002-3937-7708 View further author information

Matheus Joner WiestKITE, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, Canada

https://orcid.org/0000-0003-1444-4828 View further author information

Gaya JeyathevanKITE, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, Canada

https://orcid.org/0000-0001-5525-3214 View further author information

S. Mohammad AlaviniaDivision of Physical Therapy and Rehabilitation, Department of Medicine, University of Toronto, Toronto, ON, Canada;KITE, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, Canada

https://orcid.org/0000-0002-5503-9362 View further author information

B. Catharine CravenRehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, ON, Canada;Division of Physical Therapy and Rehabilitation, Department of Medicine, University of Toronto, Toronto, ON, Canada;Brain and Spinal Cord Rehabilitation Program, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, Canada;KITE, Toronto Rehabilitation Institute – University Health Network, Toronto, ON, CanadaCorrespondence[email protected]

https://orcid.org/0000-0001-8234-6803 View further author information

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Figures & data

Figure 1 Emotional Well-Being (EWB) Driver diagram. UEMS: Upper-Extremity Motor Score; LEMS: Lower-Extremity Motor Score; NLI: Neurological Level of Injury; HR: Heart Rate; BP: Blood Pressure; PTSD: Post-Traumatic Stress Disorder; UTI: Urinary Tract Infection.

Figure 2 Depression Driver diagram. UEMS: Upper-Extremity Motor Score; LEMS: Lower-Extremity Motor Score; NLI: Neurological Level of Injury; AIS: ASIA Impairment Scale; HR: Heart Rate; BP: Blood Pressure; PIL: Purpose In Life; EROS: Environmental Rewards Observation Scale; CBT: Cognitive Behavioral Therapy. *Personality disorder, substance abuse, bipolar disorder, Schizophrenia, anxiety, and Post-Traumatic Stress Disorder (PTSD). **Intravenous anesthesia, tracheostomy, artificial respiration, and gastrostomy.

Figure 3 A diagram depicting a potential model for future emotional well-being service provision (taken from the E-Scan Atlas with permission from the author^Citation37).