Exploring the need for a new UK occupational therapy intervention for people with dementia and family carers: Community Occupational Therapy in Dementia (COTiD). A focus group study

Figures & data

Table 1. Recruited participants.

	Group 1		Group 2		Group 3
	PwD*	FC*	PwD	FC	PwD	FC
Number in group	9	13	7	5	2	3
Male	6	4	6	0	1	3
Female	3	9	1	5	1	0
Relationship to PwD – spouse	n/a	11	n/a	3	n/a	1
Relationship to PwD – child	n/a	2	n/a	2	n/a	2

*Note: PwD = person with dementia; FC = family carer.

Table 2. Themes and definitions from cross-site analysis.

Themes	Definition
Loss and living with dementia	Wide-ranging impacts of dementia and ageing, including the following: • Negative impact of dementia • Social, physical, cognitive, emotional/psychological • Reduced independence with daily activities • Reduced ability to carry out leisure activities/hobbies
What helped us	• What people wanted around the time of diagnosis • What did not help them at the time of diagnosis • Social and leisure activities that people enjoyed/valued • Out-of-house activities • Meeting people in similar circumstances • Respite • Coping strategies • Family support/relationships • Help and support in general, including research
Consistency and continuity	• Need for follow-up • The need for the same occupational therapist to be present throughout COTiD • Different behaviours with different people • May do more/try more with OT than family carer