‘They simply do not understand’: a focus group study exploring the lived experiences of family caregivers of people with frontotemporal dementia

Figures & data

Table 1. Characteristics of the family members (n = 24) of persons with FTD (n = 20).

Variable	N
Gender (n = 24) Male (%) Female (%)	7 (29.2) 17 (70.8)
Age (n = 24) Mean (min–max)	55.7 (31–79)
Relationship to the person with FTD (n = 24) Spouse Child Child-in-law Divorced from spouse with FTD Sibling	16 5 1 1 1
Gender person with FTD (n = 20) Male (%) Female (%)	13 (65.0) 7 (35.0)
Clinical syndrome in person with FTD (n = 20) Behavioral variant Language variant	15 5
Living situation of the person with FTD (n = 20) Living at home Living at home and using daytime facilities Institutionalized Person with FTD passed away	5 3 10 2

In total, 24 relatives of 20 persons with FTD participated in the focus group interviews.

FTD: Frontotemporal dementia.

Figure 1. Caregiver experiences throughout the caregiving trajectory.