I want to be seen as myself: needs and perspectives of persons with dementia concerning collaboration and a possible future move to the nursing home in palliative dementia care

Figures & data

Table 1. Inclusion criteria.

Persons diagnosed with dementia were included when:
1. They were 65 years or older and living at home.
2. They received care from the partner organisation of the DEDICATED project.
3. They were aware that they had dementia.
4. They were able to understand the Dutch language.
5. They were physically and cognitive able to participate with the interview
6. They were informed about the research and willing to participate.

Figure 1. Data analysis scheme. Adapted from the figure depicted in Elo & Kyngäs (2008). The stars indicate the steps in inductive content analysis.

Table 2. Characteristics of persons with dementia (N = 18).

Pseudonym	Age	Residence	Involved informal caregiver
Mr Jones	80	Home	Volunteer
Mr Williams	81	Home	Spouse
Mr Smith	83	Home	Spouse
Mr Robinson	83	Home	Spouse
Mrs Jackson	85	Sheltered home	None
Mr Henderson	77	Home	Spouse
Mr Fox^b	93	Nursing home	Son
Mr Thatcher^b^,c	86	Home	None
Mr Brewer	93	Home	None
Mrs Peters	89	Home	Niece
Mr Miller	73	Home	Spouse
Mrs Baker	94	Sheltered home	Daughter
Mr Johnson^a	72	Home	None
Mr Fisher	65	Home	None
Mrs O’Brink	88	Home	Daughter
Mrs Newhouse	87	Home	Daughter
Mrs Garrison	67	Home	Daughter
Mrs Damcott ^c	82	Home	Volunteer

^aParticipant was in an early stage of dementia, had high concentration and communication capacities and had not yet experienced any physical or cognitive deterioration.

^bParticipant had advanced dementia, was not able to optimally concentrate or communicate and was not able to realize the presence of healthcare professionals in their daily life.

^cDuring this interview a dementia case manager or volunteer was present.

Figure 2. Theme 1. My perception of collaboration among healthcare professionals. Abbreviations: HCPs = healthcare professionals.

Figure 3. Theme 2. My needs in interprofessional collaboration. Abbreviations: HCPs = healthcare professionals.

Figure 4. Theme 3. My coping strategies for a possible future move to the nursing home. Abbreviations: NH = nursing homes and o/a = or/and.

Figure 5. Theme 4. My preferences when a nursing home becomes my possible future home. Abbreviations: NH = nursing home.