Parents’ experiences of parenting a preadolescent child with OCD: A qualitative study

Figures & data

Figure 1. Recruitment of participants.

Note. ASC = Autism Spectrum Condition; ChOCI-R-P = Children’s Obsessional Compulsive Inventory Revised Parent report

Table 1. Participant Characteristics.

Child
n	16
Mean age (range), years	11.8 (8–14)
Mean age of diagnosis (range), years	10.3 (6–12)
Female, n (%)	9 (56.3%)
Ethnicity^a
White British, n (%)	13 (81.3%)
Any other white background, n (%)	1 (6.3%)
Mixed background, n (%)	1 (6.3%)
Asian background, n (%)	1 (6.3%)
Parent
n	22
Mean age (range), years	44.6 (35–56)
Mother, n (%)	15 (68.2%)
Ethnicity
White British, n (%)	16 (72.7%)
Any other white background, n (%)	2 (9.1%)
Asian background, n (%)	2 (9.1%)
Not stated	2 (9.1%)
Caregiving role
Primary caregiver, n (%)	9 (41.0%)
Secondary caregiver, n (%)	3 (13.6%)
Shared caregiver, n (%)	10 (45.5%)
Parent education
School completion, n (%)	1 (4.5%)
Further education (e.g. college, vocational courses), n (%)	3 (13.6%)
Higher education (e.g. undergraduate degree), n (%)	12 (54.5%)
Postgraduate education, n (%)	6 (27.3%)
Parent employment status
Unemployed, n (%)	2 (9.1%)
Employed (part-time), n (%)	9 (41.0%)
Employed (full-time), n (%)	10 (45.5%)
Other (self-employed), n (%)	1 (4.5%)
Help-seeking
Not sought treatment, n (%)	0
Waitlist for treatment, n (%)	8 (50%)
Local CAMHS, n (%)	7 (44%)
Specialist CAMHS, n (%)	1 (6%)
Currently receiving treatment, n (%)	8 (50%)
CAMHS, n (%)	4 (25%)
Private treatment provider, n (%)	4 (25%)
Previously received treatment, n (%)	5 (31.3%)
Recruitment source
CAMHS	12 (54.5%)
Other (e.g. charities, social media, private treatment providers)	10 (45.5%)

Note. ^aEthnicity categories taken from Office for National Statistics (2022). CAMHS = Child and Adolescent Mental Health Service.

Figure 2. Thematic map.

Table 2. Individual participant characteristics.

Participant ID	Caregiver	Child age	Child gender	Received any treatment
15	Mother	7–11	Female	No
17	Mother	7–11	Female	No
18	Mother	12–14	Male	No
19	Mother	7–11	Female	Yes
23	Mother	12–14	Male	Yes
24	Mother	12–14	Female	Yes
25	Mother	12–14	Female	Yes
30	Mother	12–14	Female	Yes
31	Mother	7–11	Male	Yes
33	Mother	12–14	Female	Yes
35	Mother	12–14	Male	Yes
37	Mother	12–14	Male	Yes
38	Mother	12–14	Male	No
40	Mother	12–14	Female	Yes
44	Mother	7–11	Female	Yes
22	Father	7–11	Female	No
26	Father	7–11	Female	No
27	Father	12–14	Male	No
28	Father	7–11	Female	Yes
34	Father	12–14	Male	Yes
39	Father	12–14	Female	Yes
43	Father	12–14	Female	Yes

Note. To preserve the anonymity of participants, child age is reported as 7- to 11-years or 12- to 14-years and child and parent ethnicity are not reported.

Office for National Statistics. 2022. ‘Ethnic Group, National Identity and religion’ Office for National Statistics. Accessed 31 May 2020. https://www.ons.gov.uk/methodology/classificationsandstandards/measuringequality/ethnicgroupnationalidentityandreligion#ethnic-group

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