Shared decision making for HIV pre-exposure prophylaxis (PrEP) with black transgender women

Figures & data

Figure 1. Peek Model for Shared Decision Making (Peek et al. 2016). This is copyright material reprinted with permission from Springer.

Table 1. Sociodemographic and health characteristics of participants.

Characteristic	N (%)
Self-identified gender
MTF/Transgender Female	37 (97.4)
Genderqueer	1 (2.6)
Age group*
≤ 30 years	25 (65.8)
31-50 years	8 (21.1)
> 50 years	3 (7.9)
Race/Ethnicity^†
Black	36 (94.7)
African American	30 (78.9)
Multiracial	9 (23.7)
Other	1 (2.6)
Education
< 12^th grade	12 (31.6)
High school or General Education Development (GED)	9 (23.7)
Some college/2 year degree	15 (39.5)
4+ years of college	2 (5.3)
Employment status
Full time	9 (23.7)
Part time	5 (13.2)
Student	7 (18.4)
Unable to work	1 (2.6)
Unemployed	13 (34.2)
Retired	1 (2.6)
Annual income*
< $20,000/Not employed	26 (68.4)
$20,000 - $50,000	8 (21.1)
> $50,000	2 (5.3)
Health insurance
Private	6 (15.8)
Medicaid and/or Medicare	22 (57.9)
Other/Don’t have healthcare	5 (13.2)
Free/reduced cost clinic	5 (13.2)
Have a regular healthcare provider	36 (94.7)
Medical or surgical feminization	38 (100.0)
Have discussed PrEP with a provider	28 (73.7)
Sexual orientation
Straight/Heterosexual	13 (34.2)
Gay	13 (34.2)
Bisexual, pansexual, or queer	9 (23.7)
Other (open, N/A)	3 (7.9)
Sex partners in the past 12 months^†
Men	30 (79.0)
Women	7 (18.4)
FTM/Transgender men	6 (15.8)
MTF/Transgender women	3 (7.9)
Genderqueer	3 (7.9)
Other	1 (2.6)
None	2 (5.3)
Ever tested for HIV
Yes	36 (94.7)
No	2 (5.3)
HIV status^‡
HIV+	12 (31.6)
HIV–	22 (57.9)
Unknown	4 (10.5)
History of STI	14 (36.8)

* Variable categories may not add up to total N due to missing data.

^† Participants were able to choose more than one option, thus cumulative percentages may not equal 100%.

^‡ Self-reported status.

Table 2. Healthcare experiences of participants.

Healthcare Experience*	N (%)
Open about being LGBTQ with providers
Strongly Agree	26 (68.4)
Agree	6 (15.8)
Neutral	2 (5.3)
Disagree	2 (5.3)
Strongly Disagree	2 (5.3)
Don’t’ Know/ No Experience	0
Does not apply to me	0
Feel respected by providers
Strongly Agree	20 (52.6)
Agree	12 (31.6)
Neutral	3 (7.9)
Disagree	3 (7.9)
Strongly Disagree	0
Don’t’ Know/ No Experience	0
Does not apply to me	0
Seek out LGBTQ-friendly providers
Strongly Agree	24 (63.2)
Agree	7 (18.4)
Neutral	5 (13.2)
Disagree	2 (5.3)
Strongly Disagree	0
Don’t’ Know/ No Experience	0
Does not apply to me	0
Seek out providers of my own race/ethnicity
Strongly Agree	9 (23.7)
Agree	4 (10.5)
Neutral	7 (18.4)
Disagree	12 (31.6)
Strongly Disagree	4 (10.5)
Don’t’ Know/ No Experience	1 (2.6)
Does not apply to me	1 (2.6)
In the past year, provider asked about sexual orientation
Yes	16 (42.1)
No	11 (28.9)
My provider already knew	11 (28.9)
In the past year, my provider asked about gender identity^†
Yes	12 (31.6)
No	15 (39.5)
Provider already knew	13 (34.2)
Have had a visit with my provider where I needed to make a decision about my health^‡
Yes	26 (68.4)
No	11 (28.9)
Provider asked which treatment option I prefer^‡
Completely disagree	5 (13.2)
Strongly disagree	4 (10.5)
Somewhat disagree	0
Somewhat agree	3 (7.9)
Strongly agree	9 (23.7)
Completely agree	11 (28.9)
Provider and I reached an agreement on how to proceed^‡
Completely disagree	5 (13.2)
Strongly disagree	3 (7.9)
Somewhat disagree	2 (5.3)
Somewhat agree	2 (5.3)
Strongly agree	12 (31.6)
Completely agree	9 (23.7)
Providers have treated me differently from other patients^†
Never	22 (57.9)
Due to homophobia	5 (13.2)
Due to transphobia	9 (23.7)
Due to discrimination against people living with HIV	0
Due to race or ethnicity	4 (10.5)
Happened for other reasons	0
I have received worse care than other patients^†
Never	26 (68.4)
Due to homophobia	5 (13.2)
Due to transphobia	4 (10.5)
Due to discrimination against people living with HIV	0
Due to race or ethnicity	4 (10.5)
Happened for other reasons	1 (2.6)

* Question and response options have been shortened; see Supplementary Appendix A for full survey questions.

^† Participants were able to choose more than one option, thus cumulative percentages may not equal 100%.

^‡ Variable categories may not add up to total N due to missing data.

Figure 2. Adapted Peek Model for Shared Decision Making for PrEP between Black Transgender Women and Healthcare Providers.

Peek, M. E., F. Y. Lopez, H. S. Williams, L. J. Xu, M. C. McNulty, M. E. Acree, and J. A. Schneider. 2016. “Development of a Conceptual Framework for Understanding Shared Decision Making among African-American LGBT Patients and Their Clinicians.” Journal of General Internal Medicine 31 (6): 677–687.

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