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Information, Communication & Society Volume 19, 2016 - Issue 11
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Articles

Health activism and the logic of connective action. A case study of rare disease patient organisations

Stefania VicariDepartment of Media and Communication, University of Leicester, Leicester, UKCorrespondence[email protected]
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Franco CappaiFase 1 Srl, Cagliari, ItalyView further author information
Pages 1653-1671 | Received 28 Jul 2015, Accepted 05 Feb 2016, Published online: 21 Mar 2016

Figures & data

Table 1. Sample: rare diseases and patient organisations.

Figure 1. Digital mechanisms on the websites of rare disease patient organisations.

Figure 1. Digital mechanisms on the websites of rare disease patient organisations.

Figure 2. Sample snowball 1st degree network (network crawl by issuecrawler.net, courtesy of the Govcom Foundation).

Figure 2. Sample snowball 1st degree network (network crawl by issuecrawler.net, courtesy of the Govcom Foundation).

Figure 3. Sample co-links network (network crawl by issuecrawler.net, courtesy of the Govcom Foundation).

Figure 3. Sample co-links network (network crawl by issuecrawler.net, courtesy of the Govcom Foundation).

Table 2. Most central (in-degree) nodes.

Related Research Data

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Source: SAGE Publications
Becoming the expert constructing health knowledge in epistemic communities online
Source: Stockholms universitet, Svenska/Nordiska språk
Co-creating a knowledge base in the "22q11.2 deletion syndrome" community.
Source: Springer Science and Business Media LLC

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