Long-term health-related burden of adult congenital heart diseases in Hong Kong

Figures & data

Table 1. Demographic data of all identified congenital heart disease patients.

	Living patients	Death cases	Total
n	377 (85.7%)	56 (12.9%)	433 (100.0%)
Median age	43 (30–58)	66.5 (52–77.5)	47 (31–62)
Female	232 (61.5%)	33 (58.9%)	265 (61.2%)
Ethnicity
Chinese	364 (96.6%)	56 (100.0%)	420 (97.0%)
English	2 (0.5%)	0 (0%)	2 (0.5%)
Philippine	1 (0.3%)	0 (0%)	1 (0.2%)
Others	10 (2.7%)	0 (0%)	10 (2.3%)
Disease complexity
Simple	208 (55.2%)	22 (39.3%)	230 (53.1%)
Moderate	130 (34.5%)	16 (28.6%)	146 (33.7%)
Complex	39 (10.3%)	18 (32.1%)	57 (13.2%)

Table 2. Top five heart defects of congenital heart disease.

Heart defect	n	Median age (IQR)	Female proportion
Ventricular Septal Defect	154 (35.6%)	39.5 (28.0–56.0)	53.6%
Atrial Septal Defect	149 (34.4%)	54.0 (36.0–63.0)	65.1%
Patent Ductus Arteriosus	41 (9.5%)	62.0 (50.0–69.0)	70.4%
Tetralogy of Fallot	34 (7.9%)	24.5 (22.0–35.0)	40.6%
Patent Foramen Ovale	23 (5.3%)	50.0 (25.0–75.0)	73.7%

Table 3. Summary of clinical and economic outcomes.

	All patients	Simple	Moderate	Severe	p-value
Clinical outcomes
n	336	176	123	37
Arrhythmia	65 (19.3%)	31 (17.6%)	20 (16.2%)	14 (37.8%)	0.010
Heart Failure	36 (10.7%)	14 (8.0%)	13 (10.6%)	9 (24.3%)	0.014
Pulmonary Hypertension	23 (6.8%)	0 (0.0%)	0 (0.0%)	23 (62.2%)	N/A
Infective Endocarditis	12 (3.6%)	5 (2.8%)	6 (4.9%)	1 (2.7%)	0.618
Economic outcomes
n	336	176	123	37
Annual cost	US$2,912.5	US$ 2,637.6	US$ 2,249.6	US$ 6,425	*

* p-value is 0.026 for moderate vs severe and 0.013 for simple vs severe.

Data availability statement

The datasets during and/or analyzed during the current study are available from the corresponding author on reasonable request.