Situational expectations and surveillance in families affected by dementia: organising uncertainties of ageing and cognition

Figures & data

Figure 1. Example ecomap.

Table 1. Participants^a.

People with dementia	Network members
Henry 79, retired optician, Derbyshire, Alzheimer’s disease, diagnosed 4 years	Julie, wife Michael, son Claudia, daughter
April 82, retired teacher, Leicestershire, Alzheimer’s disease, diagnosed 4 years	Lauren, daughter Caroline, daughter 5 adult grandsons (Cameron, Joe, Adrian, Matt, David)
Paul 74, retired lorry driver, Derbyshire, fronto-temporal dementia, diagnosed 10 years	Janice, wife Pauline, community mental health nurse Ian, son
Melvin 92, retired electrical engineer, Leicestershire, vascular dementia, diagnosed ½ year	Mary, wife Michelle, daughter
Brian 85, retired electrical engineer, Leicestershire, mixed Alzheimer’s disease and vascular dementia, diagnosed 3 years	Mavis, wife Jacob, son Ellie, hired carer Carl, son
Bill 80, retired labourer, Nottinghamshire, vascular dementia, diagnosed 2 ½ years	Beth, wife Meadowview Day Centre (Katherine) Memory Café (Lisa)
Peter 82, retired accountant, Nottinghamshire, Alzheimer’s disease, diagnosed 2 years	Marylyn, wife Malcolm, son Dr Taylor, GP Reverend Houghton, vicar

^a All participant names are pseudonyms.