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Expert Review of Neurotherapeutics Volume 21, 2021 - Issue 6
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Special Report

The impact of COVID-19 on palliative care for people with Parkinson’s and response to future pandemics

K Ray Chaudhuria Department of Basic and Clinical Neuroscience, Institute of Psychiatry, Psychology & Neuroscience at King’s College and King’s College Hospital NHS Foundation Trust, London, UK;b Parkinson Foundation Centre of Excellence, King’s College Hospital, London, UKORCID Iconhttps://orcid.org/0000-0003-2815-0505View further author information
ORCID Icon,
Katarina Rukavinaa Department of Basic and Clinical Neuroscience, Institute of Psychiatry, Psychology & Neuroscience at King’s College and King’s College Hospital NHS Foundation Trust, London, UK;b Parkinson Foundation Centre of Excellence, King’s College Hospital, London, UKCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-8744-5058View further author information
ORCID Icon,
Victor McConveyc Parkinson’s Victoria Board, Victoria, AustraliaView further author information
,
Angelo Antoninid Department of Neuroscience, Movement Disorders Unit - ERN Rare Neurological Diseases, University of Padua, ItalyView further author information
,
Stefan Lorenzle Professorship for Palliative Care, Institute of Nursing Science and Practice, Paracelsus Medical University, Salzburg, Austria;f Department of Neurology, Klinikum Agatharied, Hausham, Germany;g Department for Palliative Medicine, Klinikum der Universität München, Ludwig-Maximilians-University, Munich, GermanyView further author information
,
Roongroj Bhidayasirih The Academy of Science, the Royal Society of Thailand, Bangkok, Thailand;i Chulalongkorn Centre of Excellence for Parkinson’s Disease & Related Disorders, Department of Medicine, Faculty of Medicine, Chulalongkorn University and King Chulalongkorn Memorial Hospital, Bangkok, ThailandView further author information
,
Maria Elisa Pimentel Piemontej Department of Physical Therapy, Speech Therapy, and Occupational Therapy, Medical School, University of Sao Paulo, Sao Paulo, BrazilView further author information
,
Shen-Yang Limk Division of Neurology, Department of Medicine; and the Mah Pooi Soo & Tan Chin Nam Centre for Parkinson's & Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, MalaysiaView further author information
,
Edward Richfieldl Department for Elderly Medicine North Bristol NHS Trust, Bristol, UKView further author information
,
Richard Walkerm Northumbria Healthcare NHS Foundation Trust, North Tyneside General Hospital, Tyne and Wear, UKView further author information
,
Raquel Bouca-Machadon Instituto De Medicina Molecular João Lobo Antunes, Lisbon, Portugal;o CNS - Campus Neurológico Sénior, Torres Vedras, PortugalView further author information
,
Sabrina Bajwahp Department of Palliative Care, Cicely Saunders Institute, Policy and Rehabilitation, King’s College London, London, UKView further author information
,
Wei Gaop Department of Palliative Care, Cicely Saunders Institute, Policy and Rehabilitation, King’s College London, London, UKView further author information
,
Dhaval Trivedia Department of Basic and Clinical Neuroscience, Institute of Psychiatry, Psychology & Neuroscience at King’s College and King’s College Hospital NHS Foundation Trust, London, UK;b Parkinson Foundation Centre of Excellence, King’s College Hospital, London, UKView further author information
&
Janis Miyasakiq Department of Medicine, Division Neurology, University of Alberta, Edmonton, CanadaView further author information
 show all
Pages 615-623 | Received 18 Mar 2021, Accepted 26 Apr 2021, Published online: 19 May 2021

Figures & data

Figure 1. The possible enablers of patient-centered, holistic approach to palliative care for people with Parkinson’s during the COVID-19 pandemic. NMS – Non-motor symptoms, PwP – People with Parkinson’s

Figure 1. The possible enablers of patient-centered, holistic approach to palliative care for people with Parkinson’s during the COVID-19 pandemic. NMS – Non-motor symptoms, PwP – People with Parkinson’s

Figure 2. Prevention and management of delirium, both hypo- and hyperactive, in PwP affected by COVID-19. DRT – dopamine replacement therapy, ACB – Acetylcholine cognitive burden scale

Figure 2. Prevention and management of delirium, both hypo- and hyperactive, in PwP affected by COVID-19. DRT – dopamine replacement therapy, ACB – Acetylcholine cognitive burden scale

Figure 3. Worsening of particular non-motor symptoms in PwP during the COVID-19 pandemic. PwP – People with Parkisnon’s, NMS - Non-motor symptoms,NMSQuest – Non-motor Symptoms Questionnaire

Figure 3. Worsening of particular non-motor symptoms in PwP during the COVID-19 pandemic. PwP – People with Parkisnon’s, NMS - Non-motor symptoms,NMSQuest – Non-motor Symptoms Questionnaire

Figure 4. Worsening of PD-related pain during the COVID-19 pandemic – King’s experience. NRS – Numeric rating scale

Figure 4. Worsening of PD-related pain during the COVID-19 pandemic – King’s experience. NRS – Numeric rating scale

Figure 5. A flowchart addressing palliative and advanced care during COVID-19 pandemic tailored for people with Parkinson’s. PwP – People with Parkinson’s, HCP – Health Care Professional, NMS – Non-motor symptoms, NMSQ – NMS Questionnaire

Figure 5. A flowchart addressing palliative and advanced care during COVID-19 pandemic tailored for people with Parkinson’s. PwP – People with Parkinson’s, HCP – Health Care Professional, NMS – Non-motor symptoms, NMSQ – NMS Questionnaire

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