Living an ordinary life – yet not: the everyday life of children and adolescents living with a parent with deafblindness

Figures & data

Table 1. Examples of exact words, codes, subcategories and categories

Exact words	Code	Subcategory	Category
Both my mum and my father are there for me [regardless of having deafblindness or not]	Parental support	Having the same family life as their friends	A family like any other
Being in the skate park, hanging out with friends, or playing games	Leisure time activities	Acting like other children
I have never cared about what other people think	Don’t care	It is what it is
If we are going to take a spontaneous trip then we have to call a cab or check the bus timetable	Different family	Acknowledging differences	Different everyday life
Don’t walk at a fast pace since my parent won’t be able to keep up	Adapt the pace	Adjusting to the parent’s needs
We don’t have everything like everyone else	Don’t have everything	Financial strain
I need to be my parent’s eyes and ears and explain things to my parent	Connector to the surrounding world	Helping the parent	Being there for the parent
Looking out for my parent so they doesn’t hurt themselves	Keeping an eye on	Protecting the parent from harm
When I say they [the parent] cannot hear, they [other people] start speaking English or with a loud voice close to my parents face as if my parent does not understand anything	Other people’s ignorance	Feelings of frustration	Being emotionally affected
You should never think that deafblind people have it so easy. They have a really hard time	Having a hard time	Feelings of compassion
Support from my sister, she has “experienced” the same things as me	Support from siblings	Need for support

Figure 1. Overview of the subcategories, categories and theme.