https://orcid.org/0000-0003-3371-4547
Figures & data
Table 1. Participants’ and informants’ characteristics.
Table 2. Applicability of items about cognitive functioning for people with SPI(M)D.
Table 3. Applicability of items about ADL for people with SPI(M)D.
Table 4. Applicability of items about behavioral and psychological functioning for people with SPI(M)D.
Table 5. Applicability of items about motor functioning for people with SPI(M)D.
Table 6. Applicability of items about medical comorbidities for people with SPI(M)D.
Figure 1. Applicability of verbal items for people with SPI(M)D with and without verbal communication skills. The not applicable percentages within each subgroup were divided into four quartiles, namely 0–25%, 26–50%, 51–75% and 76–100%. 0–25% are white meaning applicable, 26–50% are light gray meaning somewhat applicable, 51–75% are middle gray meaning hardly applicable and 76–100% are dark gray meaning not at all applicable. Abbreviations: BPSD-DS II, Behavioral and Psychological Symptoms of Dementia in Down Syndrome evaluation scale version II; DSVH, adapted Dutch version of the Dementia Scale for Down Syndrome; DVZ, original Dutch Dementia Questionnaire for persons with mental retardation; SRZ, Social competence Rating scale for people with intellectual disabilities.
Figure 2. Applicability of gross motor function items for people with SPI(M)D with (i.e., GMFCS level I, II and III) and without (i.e., GMFCS level IV, V) independent walking skills. The not applicable percentages within each subgroup were divided into four quartiles, namely 0–25%, 26–50%, 51–75% and 76–100%. 0–25% are white meaning applicable, 26–50% are light gray meaning somewhat applicable, 51–75% are middle gray meaning hardly applicable and 76–100% are dark gray meaning not at all applicable. Gross Motor Function Classification System (GMFCS) levels: Level I, can walk without limitations; Level II, walk with limitations; Level III, walk with assistive mobility device; Level IV, walking ability severely limited even with assistive devices, use of power wheelchair; Level V, transported by manual wheelchair. Abbreviations: DSVH, adapted Dutch version of the Dementia Scale for Down Syndrome; DVZ, original Dutch Dementia Questionnaire for persons with mental retardation.
