A new clinical challenge: supporting patients coping with the long-term effects of COVID-19

Figures & data

Table 1. Eliciting COVID-19 history and symptomatology.

Did you have COVID-19 (or do you think you may have had COVID-19)? Did your exhaustion, brain fog, fatigue, sleep disturbance, anxiety/depression exist before your COVID-19 infection or afterwards? What fraction of your pre-illness capacity are you functioning at? What happens when you engage in normal (previously tolerated) physical or mental exertion? How much activity does it take to make you feel ill or to trigger illness worsening? How long does it take to recover from this physical or mental effort? Do you avoid or change certain activities because of what happens after you do them?

Source: Muirhead, N. Personal communication, 2021 Sep 15. For further discussion with elaboration of PEM view [44].

Table 2. Online Resources.

The US Clinician Coalition for ME/CFS https://mecfsclinicancoalition.org Bateman Horne Center HTTPS://BATEMANHORNECENTER.ORG Open Medicine Foundation HTTPS://WWW.OMF.NGO MEAction HTTPS://WWW.MEACTION.NET Solve ME/CFS HTTPS://SOLVECFS.ORG Body Politic Covid-19 Support Group HTTPS://WWW.WEAREBODYPOLITIC.COM/COVID19 Patient Led Research Collaborative HTTPS://PATIENTRESEARCHCOVID19.COM/ COVID-19 Longhaulers Advocacy Project HTTPS://WWW.LONGHAULER-ADVOCACY.ORG/ Long COVID Alliance: HTTPS://LONGCOVIDALLIANCE.ORG/ CanCME Research Network HTTP://WWW.ICANCME.CA International Association for CFS/ME HTTPS://WWW.IACFSME.ORG/ME-CFS NIH ME/CFS Research Network HTTPS://MECFS.RTI.ORG/ NIH ME/CFS Medical Research Initiative HTTPS://WWW.NIH.GOV/MECFS/ABOUT-MECFS CDC HTTP://WWW.CDC.GOV/ME-CFS/

Source: Authors.

A conversation about Myalgic Encephalomyelitis with Dr.: Nina Muirhead [Internet]. Montréal: ICanCME Research Network; 2021 Mar 16 [cited 2022 Aug 22]. Video: 1:03:24 hrs. Available from: https://www.youtube.com/watch?v=ilcben3ssQY.

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