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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 20, 2019 - Issue 3-4
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Research Article

A standard operating procedure for King’s ALS clinical staging

Rubika BalendraDepartment of Neurodegenerative Disease, UCL Institute of Neurology, London, UK, ;Department of Genetics, Evolution and Environment, Institute of Healthy Ageing, University College London, London, UK, and View further author information
,
Ahmad Al KhleifatDepartment of Basic and Clinical Neuroscience, Maurice Wohl Clinical Neuroscience Institute, King’s College London, London, UKView further author information
,
Ton FangDepartment of Basic and Clinical Neuroscience, Maurice Wohl Clinical Neuroscience Institute, King’s College London, London, UKView further author information
&
Ammar Al-ChalabiDepartment of Basic and Clinical Neuroscience, Maurice Wohl Clinical Neuroscience Institute, King’s College London, London, UKCorrespondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-4924-7712View further author information
ORCID Icon
Pages 159-164 | Received 10 Sep 2018, Accepted 27 Nov 2018, Published online: 18 Feb 2019

Figures & data

Figure 1 Demographics of participants included in the study. (A) The study consisted of 61 participants in total, with doctors (65.5%), nurses (9.1%), and allied health care professionals (25.5%) represented in the cohort. (B) There was an even distribution between those with less than 10 years’ experience working in ALS (50.8%) and those with 10 years’ or greater experience (48.2%).

Figure 1 Demographics of participants included in the study. (A) The study consisted of 61 participants in total, with doctors (65.5%), nurses (9.1%), and allied health care professionals (25.5%) represented in the cohort. (B) There was an even distribution between those with less than 10 years’ experience working in ALS (50.8%) and those with 10 years’ or greater experience (48.2%).

Figure 2 Use of a standard operating procedure leads to reliable clinical staging. Participants were trained in how to use the staging standard operating procedure (SOP, Supplementary Material), and most correctly staged case vignettes using the SOP. The numbers to the right of each bubble represent the number of answers within each group.

Figure 2 Use of a standard operating procedure leads to reliable clinical staging. Participants were trained in how to use the staging standard operating procedure (SOP, Supplementary Material), and most correctly staged case vignettes using the SOP. The numbers to the right of each bubble represent the number of answers within each group.

Figure 3 Variability of scores for staging using the SOP for each case vignette. Bars represent the mean and standard deviation of scores for staging using the SOP for each vignette. Variability in the answers was greatest for vignettes 8, 9, and 12.

Figure 3 Variability of scores for staging using the SOP for each case vignette. Bars represent the mean and standard deviation of scores for staging using the SOP for each vignette. Variability in the answers was greatest for vignettes 8, 9, and 12.
Supplemental material

Supplementary_Material_Revised.docx

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