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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 24, 2023 - Issue 5-6
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Multicentered Studies

PRECISION ALS—an integrated pan European patient data platform for ALS

Robert McFarlane1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Miriam Galvin1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Mark Heverin1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Éanna Mac Domhnaill1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Deirdre Murray1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Dara Meldrum1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Peter Bede1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Anthony Bolger2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Lucy Hederman2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Sinéad Impey2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Gaye Stephens2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Ciara O’Meara2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Vincent Wade2 ADAPT Centre Trinity College Dublin, Dublin, IrelandView further author information
,
Ammar Al-Chalabi3 Kings College London, TRICALS Consortium, Dublin, IrelandView further author information
,
Adriano Chiò4 University of Torino, TRICALS Consortium, Turin, ItalyView further author information
,
Phillippe Corcia5 University of Tours, TRICALS Consortium, Tours, FranceView further author information
,
Philip van Damme6 Catholic University Leuven, TRICALS Consortium, Leuven, BelgiumView further author information
,
Caroline Ingre7 Karolinska University, TRICALS Consortium, Stockholm, SwedenView further author information
,
Christopher McDermott8 Sheffield University United Kingdom, Sheffield, UKORCID Iconhttps://orcid.org/0000-0002-1269-9053View further author information
ORCID Icon,
Monica Povedanos9 University of Barcelona, TRICALS Consortium, Barcelona, SpainView further author information
,
Leonard van den Berg10 University Medical Centre, Utrecht, TRICALS Consortium, Utrecht, The Netherlands, andView further author information
&
Orla Hardiman1 Academic Unit of Neurology, Trinity College Dublin, TRICALS Consortium, Dublin, Ireland;2 ADAPT Centre Trinity College Dublin, Dublin, Ireland;11 FutureNeuro Research Centre Trinity College Dublin, Dublin, IrelandCorrespondence[email protected]
View further author information
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Pages 389-393 | Received 24 Mar 2023, Accepted 15 May 2023, Published online: 23 May 2023

Figures & data

Figure 1 Schematic showing the overview of the PRECISION ALS project structure including the incorporation of machine learning and data science in an iterative and informative way to directly better and improve patient outcome.

Figure 1 Schematic showing the overview of the PRECISION ALS project structure including the incorporation of machine learning and data science in an iterative and informative way to directly better and improve patient outcome.

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