Applying Normal PedEyeQ Thresholds to Assess Eye-related Quality of Life among Children with Strabismus

ABSTRACT

Purpose

To determine proportions of children with strabismus with below-normal Pediatric Eye Questionnaire (PedEyeQ) scores.

Methods

Ninety-eight children with strabismus (70 aged 5–11 years; 28 aged 12–17 years) were evaluated. Children completed the Child 5–11 or 12–17 PedEyeQ (Functional Vision, Bothered by Eyes/vision, Social, and Frustration/worry domains). Parents completed the Proxy (same domains plus Eye Care) and Parent PedEyeQ (Impact on Parent and Family, Worry about Child’s Eye Condition, Worry about Child’s Self-perception and Interactions, and Worry about Functional Vision domains). Previously published normal (5^th percentile) thresholds were applied to calculate proportions with below-normal scores for each domain.

Results

For the Child PedEyeQ more than 20% of 5- to 11-year-olds scored below normal, on all but the Social domain, whereas more than 50% of 12- to 17-year-olds scored below normal on all domains. On the Proxy PedEyeQ, more than 50% scored below normal on all domains when parents reported on 5- to 11-year-olds and 12- to 17-year-olds. For the Parent PedEyeQ, more than 50% of the parents of both 5- to 11-year-olds and 12- to 17-year-olds scored below normal on all domains.

Conclusions

The majority of children with strabismus have below-normal PedEyeQ scores, particularly children aged 12–17 years.

KEYWORDS:

• PedEyeQ
• strabismus
• quality of life
• functional vision
• eye-related quality of life
• normal thresholds
• children

Disclosure statement

No potential conflict of interest was reported by the author(s).

Role of the funder/sponsor

The funding sources had no role in the design and conduct of the study; collection, management, analysis, and interpretation of the data; preparation, review, or approval of the manuscript; and decision to submit the manuscript for publication.

Additional information

Funding

Financial assistance for this study came from the National Institutes of Health Grants [EY024333 (JMH, PI & EEB, Co-I), EY011751 (JMH) and EY022313 (EEB)], and Mayo Foundation, Rochester, Minnesota.