Connecting research discovery with care delivery in dementia: the development of the Indianapolis Discovery Network for Dementia

Figures & data

Table 1 Applying the reflective adaptive process to the development of IDND

Principle	Local application
Shared values are fundamental in guiding ongoing change processes in a CAS.	The interdisciplinary network would (a) facilitate the execution of quality improvement and clinical research activities that meet the local research, clinical, and community needs; (b) promote a culture of discovery, cooperation, and team work among its diverse members; and (c) disseminate knowledge and innovations in dementia care.
Creating time and space for learning and reflection to adapt and plan change.	Bimonthly face-to-face meetings and web-based resource center.
Tension and discomfort are normal in introducing a change within a CAS.	The IDND consultancy round provides a structure to facilitate discussion, feedback, and review.
Improvement team should include a variety of system’s agents with different perspectives of the system and its environment.	IDND membership is comprised of an interdisciplinary matrix of people with variety in relevant roles, expertise, skills, and perspectives. It includes geriatricians, neurologists, psychiatrists, psychologists, nurses, social workers, public health officers, health administrators, clinical researchers, and medical informaticians.
System change requires supportive and active leadership.	IDND has leadership representatives from the five health care systems in Indianapolis, the Alzheimer associations, and Indiana Minority Health Coalition.

Abbreviations: CAS, Complex Adaptive System; IDND, Indianapolis Discovery Network for Dementia.

Table 2 Characteristics of IDND members

Members and practices
Total number of members	250
Total number of practices, clinics	8
Total number of patients served	5000
Profession
Physicians	66
Nurse practitioners	15
Physician assistants	2
Other clinicians	100
Other members	67
Physician specialties
General internal medicine	30
Other: neurology, psychiatry, geriatrics	40

Abbreviation: IDND, Indianapolis Discovery Network for Dementia.

Figure 1 IDND-practice based research network.

Abbreviations: HCS, health care system; IU, Indiana University; MCP, memory care practice; PCP, primary care practice; IDND, Indianapolis Discovery Network for Dementia.

Table 3 Funding for IDND supported projects

Project titles	Total award amount
ADMIT: Alzheimer’s Disease Multi Intervention Trial	$2,706,383
PROSPECT-COMET: Prospective Outcome Systems Using Patient-Specific Electronic Data to Compare Tests and Therapies-Comparative Effectiveness Research Trial of Alzheimer’s Disease Drug	$8,422,410
PRISM-PC: Perceptions Regarding Investigational Screening for Memory Problems in Primary Care	$872,263
Healthy Aging Brain Care Monitor (HABC-Monitor) via a research grant from FOREST PHARMACEUTICALS	$222,000
Enhanced Medical Record for Aging Brain Care via a research grant from NOVARTIS PHARMACEUTICALS	$226,200
HABC MONITOR via Indiana University Roybal Center for Translational Research on Aging	$61,730
IN-PEACE: Indiana Palliative Excellence in Alzheimer Care Efforts	$154,000
CHIP: Cognitive Health in Indianapolis Project	$2,846,877
IADC: Indiana Alzheimer Disease Center	$8,817,465
IPRISP: Indianapolis Interventions and Practice Research Infrastructure Program	$456,018
Total	$24,785,346

Note: Total Award Amount = US$.