The Danish Nephrology Registry

Figures & data

Figure 1 DNR organization.

Notes: Solid lines: data transfer; dotted lines: other specified relationship.

Table 1 Biochemical data completeness in 2014

Variable	Hemodialysis (%)	Peritoneal dialysis (%)	Renal transplantation (%)
Hemoglobin	93	93	87
Albumin	93	94	87
Bicarbonate	53	55	43
Calcium	89	91	84
Total cholesterol	55	62	43
HDL cholesterol	50	54	37
LDL cholesterol	48	46	36
C-reactive protein	92	91	76
Creatinine	94	91	87
Ferritin	81	84	40
Iron	78	84	24
Parathyroid hormone	79	82	44
Phosphate	92	93	85
Transferrin	78	87	23
Transferrin	77	86	23
saturation
Triglyceride	52	50	41
Urea	93	94	90
Vitamin D	67	47	25

Abbreviations: HDL, high-density lipoprotein; LDL, low-density lipoprotein.

Table 2 Quality indicators: all indicators are published yearly

Indicator	Definition	Population	Format	Standard	Patient exclusion criteria	Indicator type
Danish Regions quality indicators
1) Planned dialysis initiation	Planned: Dialysis initiation using either 1) Arteriovenous fistula or graft 2) Tunneled venous access as the patient’s permanent access 3) PD catheter installed >6 days before start of dialysis	Incident patients treated with dialysis as their initial treatment modality	Fraction	≥60%	1) Missing data 2) Inconsistent data 3) First ESRD treatment given abroad	Process
2) Early referral to nephrology care	First visit to specialist nephrology department >16 weeks before ESRD	Incident patients treated with dialysis as their initial treatment modality	Fraction	≥70%	1) Missing data 2) Inconsistent data	Process
3) Annual dialysis mortality	Number of dialysis patient deaths divided by number of dialysis patient-years Adjustment for age and comorbidity is planned	Prevalent dialysis patients	Rate	≤25%/year	1) Missing data 2) Inconsistent data 3) Dialysis treatment periods outside Denmark	Result
4A) Transplantation: 1-year graft survival	Fraction of grafts functioning after 5 years	Incident patients receiving first transplant	Fraction	≥90%	1) Missing data 2) Inconsistent data 3) Emigration 4) Transplant operations performed abroad	Result
4B) Transplantation: 5-year graft survival	Fraction of grafts functioning after 5 years	Incident patients receiving first transplant	Fraction	≥75%	1) Missing data 2) Inconsistent data 3) Emigration 4) Transplant operations performed abroad	Result
5A) Transplantation: 1-year patient survival	Fraction of grafts functioning after 1 year Adjustment for age and comorbidity is planned	Incident transplant patients	Fraction	≥96%	1) Missing data 2) Inconsistent data 3) Emigration 4) Transplant operations performed abroad	Result
5B) Transplantation: 5-year patient survival	Fraction of patients alive 5 years after transplantation Adjustment for age and comorbidity is planned	Incident transplant patients	Fraction	≥85%	1) Missing data 2) Inconsistent data 3) Emigration 4) Transplant operations performed abroad	Result
6) Peritonitis rate (PD patients only)	Number of peritonitis episodes divided by number of PD patient-years	Incident transplant patients	Rate	≤50%/year	1) Missing data 2) Inconsistent data	Result
Biochemical quality indicators in dialysis patients: results for HD and PD patients are published separately
Hemoglobin	Fraction of patients >6.5 mM	Prevalent dialysis patients on November 1	Fraction	None		Result
Transferrin saturation	Fraction of patients >20%	Prevalent dialysis patients on November 1	Fraction	None		Result
Ferritin	Fraction of patients >200 mg/L	Prevalent dialysis patients on November 1	Fraction	None		Result
Ionized calcium	Fraction of patients 1) <1.15 mM 2) >1.25 mM 3) >1.35 mM	Prevalent dialysis patients on November 1	Fraction	None		Result
Phosphate	Fraction of patients >1.8 mM	Prevalent dialysis patients on November 1	Fraction	None		Result
Parathyroid hormone	Fraction of patients <30 pM	Prevalent dialysis patients on November 1	Fraction	None		Result
Vitamin D	Fraction of patients >75 nM	Prevalent dialysis patients on November 1	Fraction	None		Result

Abbreviations: PD, peritoneal dialysis; ESRD, end-stage renal disease; HD, hemodialysis.

Figure 2 1- and 5-year dialysis mortality (%) in Denmark during 1990–2014 grouped according to age (<65 and >65 years) and renal diagnosis. Notes: No DM: other diagnoses; hatched bars: 1990–1994; solid bars: 2010–2014; 5-year: 2005–2009.

Abbreviation: DM, diabetic nephropathy.