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Clinical Epidemiology Volume 11, 2019 - Issue
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Original Research

Validation Of Cancer Diagnoses In Electronic Health Records: Results From The Information System For Research In Primary Care (SIDIAP) In Northeast Spain

Martina Recalde1 Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGoL), Barcelona, Spain;2 Universitat Autònoma de Barcelona, Bellaterra (Cerdanyola del Vallès), Cerdanyola del Vallès, SpainView further author information
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Cyntia B Manzano-Salgado1 Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGoL), Barcelona, Spain;2 Universitat Autònoma de Barcelona, Bellaterra (Cerdanyola del Vallès), Cerdanyola del Vallès, SpainORCID Iconhttps://orcid.org/0000-0003-1242-2318View further author information
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Yesika Díaz1 Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGoL), Barcelona, SpainView further author information
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Diana Puente1 Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGoL), Barcelona, Spain;2 Universitat Autònoma de Barcelona, Bellaterra (Cerdanyola del Vallès), Cerdanyola del Vallès, SpainORCID Iconhttps://orcid.org/0000-0003-4725-537XView further author information
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Maria Del Mar Garcia-Gil1 Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGoL), Barcelona, SpainView further author information
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Rafael Marcos-Gragera3 Unitat d’Epidemiologia i Registre de Càncer de Girona (UERCG), Pla Director d’Oncologia, Institut Català d’Oncologia, Institut d’Investigació Biomèdica de Girona (IdIBGi), Universitat De Girona, Girona, Spain;4 CIBER de Epidemiología y Salud Pública (CIBERESP), Madrid, SpainORCID Iconhttps://orcid.org/0000-0001-9824-3657View further author information
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Josefa Ribes-Puig5 Catalan Cancer Plan, Department of Health of Catalonia, Barcelona, Spain;6 Department of Clinical Sciences, University of Barcelona (UB), Barcelona, SpainView further author information
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Jaume Galceran7 Registre de Càncer de Tarragona, Fundació per a la Investigació i Prevenció del Càncer (FUNCA), IISPV, Reus, SpainORCID Iconhttps://orcid.org/0000-0002-1584-7293View further author information
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Margarita Posso8 Cancer Prevention Unit and Cancer Registry, Department of Epidemiology and Evaluation, Hospital del Mar, Barcelona, SpainORCID Iconhttps://orcid.org/0000-0002-5053-257XView further author information
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Francesc Macià8 Cancer Prevention Unit and Cancer Registry, Department of Epidemiology and Evaluation, Hospital del Mar, Barcelona, SpainORCID Iconhttps://orcid.org/0000-0002-6090-5894View further author information
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Talita Duarte-Salles1 Fundació Institut Universitari per a la Recerca a l’Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGoL), Barcelona, SpainCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-8274-0357View further author information
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Pages 1015-1024 | Published online: 03 Dec 2019

Figures & data

Figure 1 Time period covered by each data source with respect to the duration of the study.

Notes: Figure adapted from Margulis, A. et al. (2017). Validation of Cancer Cases Using Primary Care, Cancer Registry, and Hospitalization Data in the UK. Epidemiology, 29(2), 1.
Abbreviation: SIDIAP, Information System for Research in Primary Care.
Figure 1 Time period covered by each data source with respect to the duration of the study.

Table 1 Descriptive Characteristics Of The SIDIAP Population With A Cancer Diagnosis In Girona (2009–2015) And Tarragona (2009–2013) By Confirmation Status From The Cancer Registries

Table 2 Validity Of The ICD-10 Codes Used To Identify Incident Cancer Diagnoses Registered In The SIDIAP Database, Cataloniaa (2009–2015)b

Figure 2 Time-difference (months) in the date of cancer diagnosis recorded in the SIDIAP and the population-based Catalonia Cancer Registriesa (2009–2015)b.

Notes: aPopulation-based cancer registries from the provinces of Girona and Tarragona. bData from the Tarragona Cancer Registry was only available for 2009–2013. Negative values indicate SIDIAP diagnosis before the registries’ diagnosis date. Brain and CNS include pituitary gland and pineal gland tumors.
Abbreviations: CNS, Central Nervous System; m, months; SIDIAP, Information System for Research in Primary Care.
Figure 2 Time-difference (months) in the date of cancer diagnosis recorded in the SIDIAP and the population-based Catalonia Cancer Registriesa (2009–2015)b.

Data Availability

In accordance with current European and national law, the data used in this study is only available for the researchers participating in this project. Thus, we are not allowed to distribute or make publicly available the data to other parties. However, researchers from public institutions can request data from the SIDIAP and other sources (eg, Cancer Registries) if they comply with certain requirements. Further information is available online (https://www.sidiap.org/index.php/menu-solicitudes-en/application-proccedure) or by contacting Anna Moleras [email protected]).

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